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11 November 2022 Home visit to complete Care Act Assessment rescheduled advocate not availableDeshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>EMAIL
From
Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>
To
"mariembrown@hotmail.com" <mariembrown@hotmail.com>
CC
"mrschidzomba@hotmail.com" <mrschidzomba@hotmail.com>
BCC
β
Subject
Home visit to complete Care Act Assessment rescheduled advocate not available
Message
Hi Marie Re: Continuation of the Care Act 2014 Assessment of needs (11/11/2022) Just to confirm conversations following my visit to you today (11/11/2022) at 10.30am as planned and agreed to complete your Care Act Assessment of care and support needs, a continuation from my initial visit to you on the 25/10/2022. You informed me that your advocate was in London today and that she would not be present to support you today. In an agreement with you, for these reasons we agreed that the assessment would not proceed without your advocate present and for this assessment to be rescheduled and that you would email me your availability. I wait for your email with dates and times. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266
12 November 2022Re: Home visit to complete Care Act Assessment rescheduled advocate not availableMarie Brown <mariembrown@hotmail.com>EMAIL
From
Marie Brown <mariembrown@hotmail.com>
To
"Deshrine Burgher"
CC
mrschidzomba@hotmail.com
BCC
β
Subject
Re: Home visit to complete Care Act Assessment rescheduled advocate not available
Message
Could someone/anyone please tell me how much I need to contribute to the cost of this agency so that I can either pay by standing order or put money into a digital jar in preparation? I'm still having to pay for laundry help this weekend to get caught up, shopping assistance etc so please take that into account. I need a third party present because I cannot deal with your leading questions Deshrine, you don't understand my cognitive challenges yet. Example is when we were talking about how I would cope over the weekend before care was in place. I had communicated in writing with everyone that I was out of money for take aways etc flat broke, not able to buy anything more. When asking me what I would do for meals Deshrine asked what are called leading questions: you can order food right? You can use the justeat app on your phone right? How do you usually order? You use the app? So you can use that right? I try to counter when that happens because I understand and can recognise leading questions. But when challenged I falter because I can't process fast enough and my memory struggles. There is a different between being able to do something physically and being able to do it financially. YES i am able to, but I had already communicated in writing I could not afford to. I ordered meals that weekend, I had to use my Bills account to pay, the bills money I had gone hungry to ringfence. I had meals that weekend, but on 1st November my bills went out, and many bounced. My first day of work was spent feeling grubby and unclean and then trying to work out WHY the bills had bounced, WHERE the bills money was and when I realised what I had done I had to borrow money to cover the bills. Added stress I could have done without. 04/11 I got paid and I repaid my friends loan, i started that pay period nearly Β£70 below what I had budgeted. That is a lot of money to someone in my situation. Two weeks groceries, two weeks diesel, internet home phone and mobile phone monthly bills combined! It was only yesterday when you again used leading questions but this time face to face, that I realised why the phone calls that Friday had been so challenging for me. I'm not angry, they are a legitimate form of questions, I have made a mental note to request the question be changed to a different type in future when I spot that type of question being used. Way too confusing for meπ±π€― Christina I'm frustrated because you chose the day and time, and it was because your availability was full there has been a two week delay. Deshrine drove all the way here and now needs to book out more time to revisit, I had set my work time and rest time around the meeting. I understand everyone is busy, but can I please remind you this is my LIFE we are trying to get back on track. Every delay hurts. I am, as ever, willing to travel to expedite things. I can attend the council house or local office etc. Regards, Marie ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Friday, November 11, 2022 11:15:49 AM To: mariembrown@hotmail.com <mariembrown@hotmail.com> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com> Subject: Home visit to complete Care Act Assessment rescheduled advocate not available Hi Marie Re: Continuation of the Care Act 2014 Assessment of needs (11/11/2022) Just to confirm conversations following my visit to you today (11/11/2022) at 10.30am as planned and agreed to complete your Care Act Assessment of care and support needs, a continuation from my initial visit to you on the 25/10/2022. You informed me that your advocate was in London today and that she would not be present to support you today. In an agreement with you, for these reasons we agreed that the assessment would not proceed without your advocate present and for this assessment to be rescheduled and that you would email me your availability. I wait for your email with dates and times. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266
12 November 2022Automatic reply: Home visit to complete Care Act Assessment rescheduled advocate not availableBev Mountain <Bev_Mountain@sandwell.gov.uk>EMAIL
From
Bev Mountain <Bev_Mountain@sandwell.gov.uk>
To
Marie Brown <mariembrown@hotmail.com>
CC
β
BCC
β
Subject
Automatic reply: Home visit to complete Care Act Assessment rescheduled advocate not available
Message
I am not available until further notice so please see alternative contacts as below. Due to Covid19, staffing levels and working conditions, this email will not be monitored. You may try the telephone numbers listed but if you experience difficulty, please use the CHT email address below. Non Res Charging Team - 07766603769/07766781885/07766776110/07887960220/07887826455 Res/Nursing Charging Team - 07766775780/07795503826/07766780242/07887893539 Booking a financial assessment β 07920365554/07810505938/07814284093/07766781272 Provider Payments Team - 07387525818/07887830767/07887831080/07887828503 CCBU Manager - 07887823433 Alternative email contact can be made on:CHT_CCBU@sandwell.gov.uk Bev Mountain Team Leader Non-Residential Charging Team
13 November 2022RE: Home visit to complete Care Act Assessment rescheduled advocate not availableJackie Taylor <jackie_taylor@sandwell.gov.uk>EMAIL
From
Jackie Taylor <jackie_taylor@sandwell.gov.uk>
To
Marie Brown <mariembrown@hotmail.com>, Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>
CC
"mrschidzomba@hotmail.com" <mrschidzomba@hotmail.com>, Bev Mountain <Bev_Mountain@sandwell.gov.uk>
BCC
β
Subject
RE: Home visit to complete Care Act Assessment rescheduled advocate not available
Message
Good Evening Marie I hope you are well. I have been trying for sometime to understand from the Council exactly what support and intervention you are receiving. I understand the your social worker has recently visited you. Moreover, I understand that the fire hazard has now been resolved. For me as the Elected Councillor involved I want to be able to sit around the table with all agencies involved in order to get the best outcomes for you. As you have contacted me I want to be able to support you in the best way I know how. Finally, it would be useful if you give permission for me to liaise with Sandwell professionals in order to do so. Kind Regards Cllr J Taylor Deputy Mayor of Sandwell Cllr Jackie Taylor Greets Green and Lyng jackie_taylor@sandwell.gov.uk <mailto:jackie_taylor@sandwell.gov.uk> mobile:07813364299 Twitter: JackieTVillia Facebook: Jacqueline Taylor From: Marie Brown <mariembrown@hotmail.com> Sent: 12 November 2022 05:57 To: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com; Jackie Taylor <jackie_taylor@sandwell.gov.uk>; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: Re: Home visit to complete Care Act Assessment rescheduled advocate not available CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Could someone/anyone please tell me how much I need to contribute to the cost of this agency so that I can either pay by standing order or put money into a digital jar in preparation? I'm still having to pay for laundry help this weekend to get caught up, shopping assistance etc so please take that into account. I need a third party present because I cannot deal with your leading questions Deshrine, you don't understand my cognitive challenges yet. Example is when we were talking about how I would cope over the weekend before care was in place. I had communicated in writing with everyone that I was out of money for take aways etc flat broke, not able to buy anything more. When asking me what I would do for meals Deshrine asked what are called leading questions: you can order food right? You can use the justeat app on your phone right? How do you usually order? You use the app? So you can use that right? I try to counter when that happens because I understand and can recognise leading questions. But when challenged I falter because I can't process fast enough and my memory struggles. There is a different between being able to do something physically and being able to do it financially. YES i am able to, but I had already communicated in writing I could not afford to. I ordered meals that weekend, I had to use my Bills account to pay, the bills money I had gone hungry to ringfence. I had meals that weekend, but on 1st November my bills went out, and many bounced. My first day of work was spent feeling grubby and unclean and then trying to work out WHY the bills had bounced, WHERE the bills money was and when I realised what I had done I had to borrow money to cover the bills. Added stress I could have done without. 04/11 I got paid and I repaid my friends loan, i started that pay period nearly Β£70 below what I had budgeted. That is a lot of money to someone in my situation. Two weeks groceries, two weeks diesel, internet home phone and mobile phone monthly bills combined! It was only yesterday when you again used leading questions but this time face to face, that I realised why the phone calls that Friday had been so challenging for me. I'm not angry, they are a legitimate form of questions, I have made a mental note to request the question be changed to a different type in future when I spot that type of question being used. Way too confusing for meπ±π€― Christina I'm frustrated because you chose the day and time, and it was because your availability was full there has been a two week delay. Deshrine drove all the way here and now needs to book out more time to revisit, I had set my work time and rest time around the meeting. I understand everyone is busy, but can I please remind you this is my LIFE we are trying to get back on track. Every delay hurts. I am, as ever, willing to travel to expedite things. I can attend the council house or local office etc. Regards, Marie ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Friday, November 11, 2022 11:15:49 AM To: mariembrown@hotmail.com <mariembrown@hotmail.com> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com> Subject: Home visit to complete Care Act Assessment rescheduled advocate not available Hi Marie Re: Continuation of the Care Act 2014 Assessment of needs (11/11/2022) Just to confirm conversations following my visit to you today (11/11/2022) at 10.30am as planned and agreed to complete your Care Act Assessment of care and support needs, a continuation from my initial visit to you on the 25/10/2022. You informed me that your advocate was in London today and that she would not be present to support you today. In an agreement with you, for these reasons we agreed that the assessment would not proceed without your advocate present and for this assessment to be rescheduled and that you would email me your availability. I wait for your email with dates and times. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266
16 November 2022Re: Home visit to complete Care Act Assessment rescheduled advocate not availableMarie Brown <mariembrown@hotmail.com>EMAIL
From
Marie Brown <mariembrown@hotmail.com>
To
"Jackie Taylor"
CC
mrschidzomba@hotmail.com
BCC
β
Subject
Re: Home visit to complete Care Act Assessment rescheduled advocate not available
Message
I authorise that, and would welcome an opportunity to meet with you face to face to go over the emails and letters I've sent trying to resolve everything. I have a tablet that has access to both emails and documents stored on my home computer. This is because I don't always understand the responses but try my best to comply. Face to face I am better able to read the face of the person in taking to and see when I haven't been clear, so I can better avoid miscommunication. So if asked "Did you contact this person" I can input the badge or the phone number and do a search, but I can't recall names or job positions unless I saw the person face to face and have visual memories. I am happy to come to the council house or any other office to facilitate this. I am confident that I haven't produced because I didn't understand that they are relevant. I have also documented the last two falls and will continue to do so now that i understand how to do so and what that term means. Best regards, Marie Brown Regards, Marie ________________________________ From: Jackie Taylor <jackie_taylor@sandwell.gov.uk> Sent: Sunday, November 13, 2022 8:19:08 PM To: Marie Brown <mariembrown@hotmail.com>; Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com>; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: RE: Home visit to complete Care Act Assessment rescheduled advocate not available Good Evening Marie I hope you are well. I have been trying for sometime to understand from the Council exactly what support and intervention you are receiving. I understand the your social worker has recently visited you. Moreover, I understand that the fire hazard has now been resolved. For me as the Elected Councillor involved I want to be able to sit around the table with all agencies involved in order to get the best outcomes for you. As you have contacted me I want to be able to support you in the best way I know how. Finally, it would be useful if you give permission for me to liaise with Sandwell professionals in order to do so. Kind Regards Cllr J Taylor Deputy Mayor of Sandwell Cllr Jackie Taylor Greets Green and Lyng jackie_taylor@sandwell.gov.uk <mailto:jackie_taylor@sandwell.gov.uk> mobile:07813364299 Twitter: JackieTVillia Facebook: Jacqueline Taylor From: Marie Brown <mariembrown@hotmail.com> Sent: 12 November 2022 05:57 To: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com; Jackie Taylor <jackie_taylor@sandwell.gov.uk>; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: Re: Home visit to complete Care Act Assessment rescheduled advocate not available CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Could someone/anyone please tell me how much I need to contribute to the cost of this agency so that I can either pay by standing order or put money into a digital jar in preparation? I'm still having to pay for laundry help this weekend to get caught up, shopping assistance etc so please take that into account. I need a third party present because I cannot deal with your leading questions Deshrine, you don't understand my cognitive challenges yet. Example is when we were talking about how I would cope over the weekend before care was in place. I had communicated in writing with everyone that I was out of money for take aways etc flat broke, not able to buy anything more. When asking me what I would do for meals Deshrine asked what are called leading questions: you can order food right? You can use the justeat app on your phone right? How do you usually order? You use the app? So you can use that right? I try to counter when that happens because I understand and can recognise leading questions. But when challenged I falter because I can't process fast enough and my memory struggles. There is a different between being able to do something physically and being able to do it financially. YES i am able to, but I had already communicated in writing I could not afford to. I ordered meals that weekend, I had to use my Bills account to pay, the bills money I had gone hungry to ringfence. I had meals that weekend, but on 1st November my bills went out, and many bounced. My first day of work was spent feeling grubby and unclean and then trying to work out WHY the bills had bounced, WHERE the bills money was and when I realised what I had done I had to borrow money to cover the bills. Added stress I could have done without. 04/11 I got paid and I repaid my friends loan, i started that pay period nearly Β£70 below what I had budgeted. That is a lot of money to someone in my situation. Two weeks groceries, two weeks diesel, internet home phone and mobile phone monthly bills combined! It was only yesterday when you again used leading questions but this time face to face, that I realised why the phone calls that Friday had been so challenging for me. I'm not angry, they are a legitimate form of questions, I have made a mental note to request the question be changed to a different type in future when I spot that type of question being used. Way too confusing for meπ±π€― Christina I'm frustrated because you chose the day and time, and it was because your availability was full there has been a two week delay. Deshrine drove all the way here and now needs to book out more time to revisit, I had set my work time and rest time around the meeting. I understand everyone is busy, but can I please remind you this is my LIFE we are trying to get back on track. Every delay hurts. I am, as ever, willing to travel to expedite things. I can attend the council house or local office etc. Regards, Marie ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Friday, November 11, 2022 11:15:49 AM To: mariembrown@hotmail.com <mariembrown@hotmail.com> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com> Subject: Home visit to complete Care Act Assessment rescheduled advocate not available Hi Marie Re: Continuation of the Care Act 2014 Assessment of needs (11/11/2022) Just to confirm conversations following my visit to you today (11/11/2022) at 10.30am as planned and agreed to complete your Care Act Assessment of care and support needs, a continuation from my initial visit to you on the 25/10/2022. You informed me that your advocate was in London today and that she would not be present to support you today. In an agreement with you, for these reasons we agreed that the assessment would not proceed without your advocate present and for this assessment to be rescheduled and that you would email me your availability. I wait for your email with dates and times. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266
16 November 2022Re: Home visit to complete Care Act Assessment rescheduled advocate not availableMarie Brown <mariembrown@hotmail.com>EMAIL
From
Marie Brown <mariembrown@hotmail.com>
To
"Jackie Taylor"
CC
mrschidzomba@hotmail.com
BCC
β
Subject
Re: Home visit to complete Care Act Assessment rescheduled advocate not available
Message
I'm sorry I didn't reply to this email sooner but I was triggered by the email about garden access and needed a break to protect my mental health so I would be able to work. I also missed emails from my employer about providing evidence of qualifications and right to work, but my new meds are kicking in and I'm balancing out, so over the next few days/weeks I'll be better able to both communicate and understand. Sincerely, Marie Regards, Marie ________________________________ From: Jackie Taylor <jackie_taylor@sandwell.gov.uk> Sent: Sunday, November 13, 2022 8:19:08 PM To: Marie Brown <mariembrown@hotmail.com>; Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com>; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: RE: Home visit to complete Care Act Assessment rescheduled advocate not available Good Evening Marie I hope you are well. I have been trying for sometime to understand from the Council exactly what support and intervention you are receiving. I understand the your social worker has recently visited you. Moreover, I understand that the fire hazard has now been resolved. For me as the Elected Councillor involved I want to be able to sit around the table with all agencies involved in order to get the best outcomes for you. As you have contacted me I want to be able to support you in the best way I know how. Finally, it would be useful if you give permission for me to liaise with Sandwell professionals in order to do so. Kind Regards Cllr J Taylor Deputy Mayor of Sandwell Cllr Jackie Taylor Greets Green and Lyng jackie_taylor@sandwell.gov.uk <mailto:jackie_taylor@sandwell.gov.uk> mobile:07813364299 Twitter: JackieTVillia Facebook: Jacqueline Taylor From: Marie Brown <mariembrown@hotmail.com> Sent: 12 November 2022 05:57 To: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com; Jackie Taylor <jackie_taylor@sandwell.gov.uk>; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: Re: Home visit to complete Care Act Assessment rescheduled advocate not available CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Could someone/anyone please tell me how much I need to contribute to the cost of this agency so that I can either pay by standing order or put money into a digital jar in preparation? I'm still having to pay for laundry help this weekend to get caught up, shopping assistance etc so please take that into account. I need a third party present because I cannot deal with your leading questions Deshrine, you don't understand my cognitive challenges yet. Example is when we were talking about how I would cope over the weekend before care was in place. I had communicated in writing with everyone that I was out of money for take aways etc flat broke, not able to buy anything more. When asking me what I would do for meals Deshrine asked what are called leading questions: you can order food right? You can use the justeat app on your phone right? How do you usually order? You use the app? So you can use that right? I try to counter when that happens because I understand and can recognise leading questions. But when challenged I falter because I can't process fast enough and my memory struggles. There is a different between being able to do something physically and being able to do it financially. YES i am able to, but I had already communicated in writing I could not afford to. I ordered meals that weekend, I had to use my Bills account to pay, the bills money I had gone hungry to ringfence. I had meals that weekend, but on 1st November my bills went out, and many bounced. My first day of work was spent feeling grubby and unclean and then trying to work out WHY the bills had bounced, WHERE the bills money was and when I realised what I had done I had to borrow money to cover the bills. Added stress I could have done without. 04/11 I got paid and I repaid my friends loan, i started that pay period nearly Β£70 below what I had budgeted. That is a lot of money to someone in my situation. Two weeks groceries, two weeks diesel, internet home phone and mobile phone monthly bills combined! It was only yesterday when you again used leading questions but this time face to face, that I realised why the phone calls that Friday had been so challenging for me. I'm not angry, they are a legitimate form of questions, I have made a mental note to request the question be changed to a different type in future when I spot that type of question being used. Way too confusing for meπ±π€― Christina I'm frustrated because you chose the day and time, and it was because your availability was full there has been a two week delay. Deshrine drove all the way here and now needs to book out more time to revisit, I had set my work time and rest time around the meeting. I understand everyone is busy, but can I please remind you this is my LIFE we are trying to get back on track. Every delay hurts. I am, as ever, willing to travel to expedite things. I can attend the council house or local office etc. Regards, Marie ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Friday, November 11, 2022 11:15:49 AM To: mariembrown@hotmail.com <mariembrown@hotmail.com> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com> Subject: Home visit to complete Care Act Assessment rescheduled advocate not available Hi Marie Re: Continuation of the Care Act 2014 Assessment of needs (11/11/2022) Just to confirm conversations following my visit to you today (11/11/2022) at 10.30am as planned and agreed to complete your Care Act Assessment of care and support needs, a continuation from my initial visit to you on the 25/10/2022. You informed me that your advocate was in London today and that she would not be present to support you today. In an agreement with you, for these reasons we agreed that the assessment would not proceed without your advocate present and for this assessment to be rescheduled and that you would email me your availability. I wait for your email with dates and times. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266
17 November 2022Re: Home visit to complete Care Act Assessment rescheduled advocate not availableMarie Brown <mariembrown@hotmail.com>EMAIL
From
Marie Brown <mariembrown@hotmail.com>
To
"Jackie Taylor"
CC
mrschidzomba@hotmail.com
BCC
β
Subject
Re: Home visit to complete Care Act Assessment rescheduled advocate not available
Message
Is Friday at 2pm confirmed as finishing the assessment? I need to block out the time on my calendar if so, and notify my manager I'll be unavailable. Regards, Marie ________________________________ From: Jackie Taylor <jackie_taylor@sandwell.gov.uk> Sent: Sunday, November 13, 2022 8:19:08 PM To: Marie Brown <mariembrown@hotmail.com>; Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com>; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: RE: Home visit to complete Care Act Assessment rescheduled advocate not available Good Evening Marie I hope you are well. I have been trying for sometime to understand from the Council exactly what support and intervention you are receiving. I understand the your social worker has recently visited you. Moreover, I understand that the fire hazard has now been resolved. For me as the Elected Councillor involved I want to be able to sit around the table with all agencies involved in order to get the best outcomes for you. As you have contacted me I want to be able to support you in the best way I know how. Finally, it would be useful if you give permission for me to liaise with Sandwell professionals in order to do so. Kind Regards Cllr J Taylor Deputy Mayor of Sandwell Cllr Jackie Taylor Greets Green and Lyng jackie_taylor@sandwell.gov.uk <mailto:jackie_taylor@sandwell.gov.uk> mobile:07813364299 Twitter: JackieTVillia Facebook: Jacqueline Taylor From: Marie Brown <mariembrown@hotmail.com> Sent: 12 November 2022 05:57 To: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com; Jackie Taylor <jackie_taylor@sandwell.gov.uk>; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: Re: Home visit to complete Care Act Assessment rescheduled advocate not available CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Could someone/anyone please tell me how much I need to contribute to the cost of this agency so that I can either pay by standing order or put money into a digital jar in preparation? I'm still having to pay for laundry help this weekend to get caught up, shopping assistance etc so please take that into account. I need a third party present because I cannot deal with your leading questions Deshrine, you don't understand my cognitive challenges yet. Example is when we were talking about how I would cope over the weekend before care was in place. I had communicated in writing with everyone that I was out of money for take aways etc flat broke, not able to buy anything more. When asking me what I would do for meals Deshrine asked what are called leading questions: you can order food right? You can use the justeat app on your phone right? How do you usually order? You use the app? So you can use that right? I try to counter when that happens because I understand and can recognise leading questions. But when challenged I falter because I can't process fast enough and my memory struggles. There is a different between being able to do something physically and being able to do it financially. YES i am able to, but I had already communicated in writing I could not afford to. I ordered meals that weekend, I had to use my Bills account to pay, the bills money I had gone hungry to ringfence. I had meals that weekend, but on 1st November my bills went out, and many bounced. My first day of work was spent feeling grubby and unclean and then trying to work out WHY the bills had bounced, WHERE the bills money was and when I realised what I had done I had to borrow money to cover the bills. Added stress I could have done without. 04/11 I got paid and I repaid my friends loan, i started that pay period nearly Β£70 below what I had budgeted. That is a lot of money to someone in my situation. Two weeks groceries, two weeks diesel, internet home phone and mobile phone monthly bills combined! It was only yesterday when you again used leading questions but this time face to face, that I realised why the phone calls that Friday had been so challenging for me. I'm not angry, they are a legitimate form of questions, I have made a mental note to request the question be changed to a different type in future when I spot that type of question being used. Way too confusing for meπ±π€― Christina I'm frustrated because you chose the day and time, and it was because your availability was full there has been a two week delay. Deshrine drove all the way here and now needs to book out more time to revisit, I had set my work time and rest time around the meeting. I understand everyone is busy, but can I please remind you this is my LIFE we are trying to get back on track. Every delay hurts. I am, as ever, willing to travel to expedite things. I can attend the council house or local office etc. Regards, Marie ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Friday, November 11, 2022 11:15:49 AM To: mariembrown@hotmail.com <mariembrown@hotmail.com> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com> Subject: Home visit to complete Care Act Assessment rescheduled advocate not available Hi Marie Re: Continuation of the Care Act 2014 Assessment of needs (11/11/2022) Just to confirm conversations following my visit to you today (11/11/2022) at 10.30am as planned and agreed to complete your Care Act Assessment of care and support needs, a continuation from my initial visit to you on the 25/10/2022. You informed me that your advocate was in London today and that she would not be present to support you today. In an agreement with you, for these reasons we agreed that the assessment would not proceed without your advocate present and for this assessment to be rescheduled and that you would email me your availability. I wait for your email with dates and times. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266
17 November 2022RE: Home visit to complete Care Act Assessment rescheduled advocate not availableDeshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>EMAIL
From
Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>
To
Marie Brown <mariembrown@hotmail.com>, Jackie Taylor <jackie_taylor@sandwell.gov.uk>
CC
"mrschidzomba@hotmail.com" <mrschidzomba@hotmail.com>
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β
Subject
RE: Home visit to complete Care Act Assessment rescheduled advocate not available
Message
Hi Marie The 18/11/2022 at 2pm is confirmed to complete the Care Act Assessment. The emergency short term provision package of care that commenced on the 08/11/2022 will also be reviewed. (POC consist of daily support and assistance with personal care, nutritional needs and weekly laundry assistance). Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266 From: Marie Brown <mariembrown@hotmail.com> Sent: 17 November 2022 06:31 To: Jackie Taylor <jackie_taylor@sandwell.gov.uk>; Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: Re: Home visit to complete Care Act Assessment rescheduled advocate not available CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Is Friday at 2pm confirmed as finishing the assessment? I need to block out the time on my calendar if so, and notify my manager I'll be unavailable. Regards, Marie ________________________________ From: Jackie Taylor <jackie_taylor@sandwell.gov.uk> Sent: Sunday, November 13, 2022 8:19:08 PM To: Marie Brown <mariembrown@hotmail.com>; Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com>; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: RE: Home visit to complete Care Act Assessment rescheduled advocate not available Good Evening Marie I hope you are well. I have been trying for sometime to understand from the Council exactly what support and intervention you are receiving. I understand the your social worker has recently visited you. Moreover, I understand that the fire hazard has now been resolved. For me as the Elected Councillor involved I want to be able to sit around the table with all agencies involved in order to get the best outcomes for you. As you have contacted me I want to be able to support you in the best way I know how. Finally, it would be useful if you give permission for me to liaise with Sandwell professionals in order to do so. Kind Regards Cllr J Taylor Deputy Mayor of Sandwell Cllr Jackie Taylor Greets Green and Lyng jackie_taylor@sandwell.gov.uk <mailto:jackie_taylor@sandwell.gov.uk> mobile:07813364299 Twitter: JackieTVillia Facebook: Jacqueline Taylor From: Marie Brown <mariembrown@hotmail.com> Sent: 12 November 2022 05:57 To: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com; Jackie Taylor <jackie_taylor@sandwell.gov.uk>; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: Re: Home visit to complete Care Act Assessment rescheduled advocate not available CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Could someone/anyone please tell me how much I need to contribute to the cost of this agency so that I can either pay by standing order or put money into a digital jar in preparation? I'm still having to pay for laundry help this weekend to get caught up, shopping assistance etc so please take that into account. I need a third party present because I cannot deal with your leading questions Deshrine, you don't understand my cognitive challenges yet. Example is when we were talking about how I would cope over the weekend before care was in place. I had communicated in writing with everyone that I was out of money for take aways etc flat broke, not able to buy anything more. When asking me what I would do for meals Deshrine asked what are called leading questions: you can order food right? You can use the justeat app on your phone right? How do you usually order? You use the app? So you can use that right? I try to counter when that happens because I understand and can recognise leading questions. But when challenged I falter because I can't process fast enough and my memory struggles. There is a different between being able to do something physically and being able to do it financially. YES i am able to, but I had already communicated in writing I could not afford to. I ordered meals that weekend, I had to use my Bills account to pay, the bills money I had gone hungry to ringfence. I had meals that weekend, but on 1st November my bills went out, and many bounced. My first day of work was spent feeling grubby and unclean and then trying to work out WHY the bills had bounced, WHERE the bills money was and when I realised what I had done I had to borrow money to cover the bills. Added stress I could have done without. 04/11 I got paid and I repaid my friends loan, i started that pay period nearly Β£70 below what I had budgeted. That is a lot of money to someone in my situation. Two weeks groceries, two weeks diesel, internet home phone and mobile phone monthly bills combined! It was only yesterday when you again used leading questions but this time face to face, that I realised why the phone calls that Friday had been so challenging for me. I'm not angry, they are a legitimate form of questions, I have made a mental note to request the question be changed to a different type in future when I spot that type of question being used. Way too confusing for meπ±π€― Christina I'm frustrated because you chose the day and time, and it was because your availability was full there has been a two week delay. Deshrine drove all the way here and now needs to book out more time to revisit, I had set my work time and rest time around the meeting. I understand everyone is busy, but can I please remind you this is my LIFE we are trying to get back on track. Every delay hurts. I am, as ever, willing to travel to expedite things. I can attend the council house or local office etc. Regards, Marie ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Friday, November 11, 2022 11:15:49 AM To: mariembrown@hotmail.com <mariembrown@hotmail.com> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com> Subject: Home visit to complete Care Act Assessment rescheduled advocate not available Hi Marie Re: Continuation of the Care Act 2014 Assessment of needs (11/11/2022) Just to confirm conversations following my visit to you today (11/11/2022) at 10.30am as planned and agreed to complete your Care Act Assessment of care and support needs, a continuation from my initial visit to you on the 25/10/2022. You informed me that your advocate was in London today and that she would not be present to support you today. In an agreement with you, for these reasons we agreed that the assessment would not proceed without your advocate present and for this assessment to be rescheduled and that you would email me your availability. I wait for your email with dates and times. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266
17 November 2022Re: Home visit to complete Care Act Assessment rescheduled advocate not availableMarie Brown <mariembrown@hotmail.com>EMAIL
From
Marie Brown <mariembrown@hotmail.com>
To
"Deshrine Burgher"
CC
mrschidzomba@hotmail.com
BCC
β
Subject
Re: Home visit to complete Care Act Assessment rescheduled advocate not available
Message
Thank you Deshrine. I was paid pip last Thursday and haven't engaged extra help the last few weeks soi have the full amount of pip ring fenced to makea contribution for costs if there isa system in place for me to transfer it? Regards, Mature Regards, Marie ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Thursday, November 17, 2022 9:17:38 AM To: Marie Brown <mariembrown@hotmail.com>; Jackie Taylor <jackie_taylor@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com> Subject: RE: Home visit to complete Care Act Assessment rescheduled advocate not available Hi Marie The 18/11/2022 at 2pm is confirmed to complete the Care Act Assessment. The emergency short term provision package of care that commenced on the 08/11/2022 will also be reviewed. (POC consist of daily support and assistance with personal care, nutritional needs and weekly laundry assistance). Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266 From: Marie Brown <mariembrown@hotmail.com> Sent: 17 November 2022 06:31 To: Jackie Taylor <jackie_taylor@sandwell.gov.uk>; Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: Re: Home visit to complete Care Act Assessment rescheduled advocate not available CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Is Friday at 2pm confirmed as finishing the assessment? I need to block out the time on my calendar if so, and notify my manager I'll be unavailable. Regards, Marie ________________________________ From: Jackie Taylor <jackie_taylor@sandwell.gov.uk> Sent: Sunday, November 13, 2022 8:19:08 PM To: Marie Brown <mariembrown@hotmail.com>; Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com>; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: RE: Home visit to complete Care Act Assessment rescheduled advocate not available Good Evening Marie I hope you are well. I have been trying for sometime to understand from the Council exactly what support and intervention you are receiving. I understand the your social worker has recently visited you. Moreover, I understand that the fire hazard has now been resolved. For me as the Elected Councillor involved I want to be able to sit around the table with all agencies involved in order to get the best outcomes for you. As you have contacted me I want to be able to support you in the best way I know how. Finally, it would be useful if you give permission for me to liaise with Sandwell professionals in order to do so. Kind Regards Cllr J Taylor Deputy Mayor of Sandwell Cllr Jackie Taylor Greets Green and Lyng jackie_taylor@sandwell.gov.uk <mailto:jackie_taylor@sandwell.gov.uk> mobile:07813364299 Twitter: JackieTVillia Facebook: Jacqueline Taylor From: Marie Brown <mariembrown@hotmail.com> Sent: 12 November 2022 05:57 To: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com; Jackie Taylor <jackie_taylor@sandwell.gov.uk>; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: Re: Home visit to complete Care Act Assessment rescheduled advocate not available CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Could someone/anyone please tell me how much I need to contribute to the cost of this agency so that I can either pay by standing order or put money into a digital jar in preparation? I'm still having to pay for laundry help this weekend to get caught up, shopping assistance etc so please take that into account. I need a third party present because I cannot deal with your leading questions Deshrine, you don't understand my cognitive challenges yet. Example is when we were talking about how I would cope over the weekend before care was in place. I had communicated in writing with everyone that I was out of money for take aways etc flat broke, not able to buy anything more. When asking me what I would do for meals Deshrine asked what are called leading questions: you can order food right? You can use the justeat app on your phone right? How do you usually order? You use the app? So you can use that right? I try to counter when that happens because I understand and can recognise leading questions. But when challenged I falter because I can't process fast enough and my memory struggles. There is a different between being able to do something physically and being able to do it financially. YES i am able to, but I had already communicated in writing I could not afford to. I ordered meals that weekend, I had to use my Bills account to pay, the bills money I had gone hungry to ringfence. I had meals that weekend, but on 1st November my bills went out, and many bounced. My first day of work was spent feeling grubby and unclean and then trying to work out WHY the bills had bounced, WHERE the bills money was and when I realised what I had done I had to borrow money to cover the bills. Added stress I could have done without. 04/11 I got paid and I repaid my friends loan, i started that pay period nearly Β£70 below what I had budgeted. That is a lot of money to someone in my situation. Two weeks groceries, two weeks diesel, internet home phone and mobile phone monthly bills combined! It was only yesterday when you again used leading questions but this time face to face, that I realised why the phone calls that Friday had been so challenging for me. I'm not angry, they are a legitimate form of questions, I have made a mental note to request the question be changed to a different type in future when I spot that type of question being used. Way too confusing for meπ±π€― Christina I'm frustrated because you chose the day and time, and it was because your availability was full there has been a two week delay. Deshrine drove all the way here and now needs to book out more time to revisit, I had set my work time and rest time around the meeting. I understand everyone is busy, but can I please remind you this is my LIFE we are trying to get back on track. Every delay hurts. I am, as ever, willing to travel to expedite things. I can attend the council house or local office etc. Regards, Marie ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Friday, November 11, 2022 11:15:49 AM To: mariembrown@hotmail.com <mariembrown@hotmail.com> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com> Subject: Home visit to complete Care Act Assessment rescheduled advocate not available Hi Marie Re: Continuation of the Care Act 2014 Assessment of needs (11/11/2022) Just to confirm conversations following my visit to you today (11/11/2022) at 10.30am as planned and agreed to complete your Care Act Assessment of care and support needs, a continuation from my initial visit to you on the 25/10/2022. You informed me that your advocate was in London today and that she would not be present to support you today. In an agreement with you, for these reasons we agreed that the assessment would not proceed without your advocate present and for this assessment to be rescheduled and that you would email me your availability. I wait for your email with dates and times. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266
17 November 2022RE: Home visit to complete Care Act Assessment rescheduled advocate not availableDeshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>EMAIL
From
Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>
To
Marie Brown <mariembrown@hotmail.com>, Jackie Taylor <jackie_taylor@sandwell.gov.uk>
CC
"mrschidzomba@hotmail.com" <mrschidzomba@hotmail.com>
BCC
β
Subject
RE: Home visit to complete Care Act Assessment rescheduled advocate not available
Message
Hi Marie Your email has been forwarded to CCBU regarding the pending financial re- assessment to assess for contribution towards care and outstanding payments. Regards Dee From: Marie Brown <mariembrown@hotmail.com> Sent: 17 November 2022 11:07 To: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>; Jackie Taylor <jackie_taylor@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com Subject: Re: Home visit to complete Care Act Assessment rescheduled advocate not available CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Thank you Deshrine. I was paid pip last Thursday and haven't engaged extra help the last few weeks soi have the full amount of pip ring fenced to makea contribution for costs if there isa system in place for me to transfer it? Regards, Mature Regards, Marie ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Thursday, November 17, 2022 9:17:38 AM To: Marie Brown <mariembrown@hotmail.com>; Jackie Taylor <jackie_taylor@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com> Subject: RE: Home visit to complete Care Act Assessment rescheduled advocate not available Hi Marie The 18/11/2022 at 2pm is confirmed to complete the Care Act Assessment. The emergency short term provision package of care that commenced on the 08/11/2022 will also be reviewed. (POC consist of daily support and assistance with personal care, nutritional needs and weekly laundry assistance). Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266 From: Marie Brown <mariembrown@hotmail.com> Sent: 17 November 2022 06:31 To: Jackie Taylor <jackie_taylor@sandwell.gov.uk>; Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: Re: Home visit to complete Care Act Assessment rescheduled advocate not available CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Is Friday at 2pm confirmed as finishing the assessment? I need to block out the time on my calendar if so, and notify my manager I'll be unavailable. Regards, Marie ________________________________ From: Jackie Taylor <jackie_taylor@sandwell.gov.uk> Sent: Sunday, November 13, 2022 8:19:08 PM To: Marie Brown <mariembrown@hotmail.com>; Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com>; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: RE: Home visit to complete Care Act Assessment rescheduled advocate not available Good Evening Marie I hope you are well. I have been trying for sometime to understand from the Council exactly what support and intervention you are receiving. I understand the your social worker has recently visited you. Moreover, I understand that the fire hazard has now been resolved. For me as the Elected Councillor involved I want to be able to sit around the table with all agencies involved in order to get the best outcomes for you. As you have contacted me I want to be able to support you in the best way I know how. Finally, it would be useful if you give permission for me to liaise with Sandwell professionals in order to do so. Kind Regards Cllr J Taylor Deputy Mayor of Sandwell Cllr Jackie Taylor Greets Green and Lyng jackie_taylor@sandwell.gov.uk <mailto:jackie_taylor@sandwell.gov.uk> mobile:07813364299 Twitter: JackieTVillia Facebook: Jacqueline Taylor From: Marie Brown <mariembrown@hotmail.com> Sent: 12 November 2022 05:57 To: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com; Jackie Taylor <jackie_taylor@sandwell.gov.uk>; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: Re: Home visit to complete Care Act Assessment rescheduled advocate not available CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Could someone/anyone please tell me how much I need to contribute to the cost of this agency so that I can either pay by standing order or put money into a digital jar in preparation? I'm still having to pay for laundry help this weekend to get caught up, shopping assistance etc so please take that into account. I need a third party present because I cannot deal with your leading questions Deshrine, you don't understand my cognitive challenges yet. Example is when we were talking about how I would cope over the weekend before care was in place. I had communicated in writing with everyone that I was out of money for take aways etc flat broke, not able to buy anything more. When asking me what I would do for meals Deshrine asked what are called leading questions: you can order food right? You can use the justeat app on your phone right? How do you usually order? You use the app? So you can use that right? I try to counter when that happens because I understand and can recognise leading questions. But when challenged I falter because I can't process fast enough and my memory struggles. There is a different between being able to do something physically and being able to do it financially. YES i am able to, but I had already communicated in writing I could not afford to. I ordered meals that weekend, I had to use my Bills account to pay, the bills money I had gone hungry to ringfence. I had meals that weekend, but on 1st November my bills went out, and many bounced. My first day of work was spent feeling grubby and unclean and then trying to work out WHY the bills had bounced, WHERE the bills money was and when I realised what I had done I had to borrow money to cover the bills. Added stress I could have done without. 04/11 I got paid and I repaid my friends loan, i started that pay period nearly Β£70 below what I had budgeted. That is a lot of money to someone in my situation. Two weeks groceries, two weeks diesel, internet home phone and mobile phone monthly bills combined! It was only yesterday when you again used leading questions but this time face to face, that I realised why the phone calls that Friday had been so challenging for me. I'm not angry, they are a legitimate form of questions, I have made a mental note to request the question be changed to a different type in future when I spot that type of question being used. Way too confusing for meπ±π€― Christina I'm frustrated because you chose the day and time, and it was because your availability was full there has been a two week delay. Deshrine drove all the way here and now needs to book out more time to revisit, I had set my work time and rest time around the meeting. I understand everyone is busy, but can I please remind you this is my LIFE we are trying to get back on track. Every delay hurts. I am, as ever, willing to travel to expedite things. I can attend the council house or local office etc. Regards, Marie ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Friday, November 11, 2022 11:15:49 AM To: mariembrown@hotmail.com <mariembrown@hotmail.com> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com> Subject: Home visit to complete Care Act Assessment rescheduled advocate not available Hi Marie Re: Continuation of the Care Act 2014 Assessment of needs (11/11/2022) Just to confirm conversations following my visit to you today (11/11/2022) at 10.30am as planned and agreed to complete your Care Act Assessment of care and support needs, a continuation from my initial visit to you on the 25/10/2022. You informed me that your advocate was in London today and that she would not be present to support you today. In an agreement with you, for these reasons we agreed that the assessment would not proceed without your advocate present and for this assessment to be rescheduled and that you would email me your availability. I wait for your email with dates and times. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266
18 November 2022Re: Home visit to complete Care Act Assessment rescheduled advocate not availableMarie Brown <mariembrown@hotmail.com>EMAIL
From
Marie Brown <mariembrown@hotmail.com>
To
"Deshrine Burgher"
CC
mrschidzomba@hotmail.com
BCC
β
Subject
Re: Home visit to complete Care Act Assessment rescheduled advocate not available
Message
Thank you. I've scheduled a chat with my manager this morning because I'm struggling to cope. Yesterday my carer arrived at 8.20 but I'm due in a video call at 8.30 every morning. She still wanted to do the call even though I couldn't shower so I was handed my breakfast mid meeting. I explained again that I cannot have a care call that overlaps the morning meeting and she said she would do me first today and be here at 6.45am She didn't show. Regards, Marie ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Thursday, November 17, 2022 11:11:43 AM To: Marie Brown <mariembrown@hotmail.com>; Jackie Taylor <jackie_taylor@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com> Subject: RE: Home visit to complete Care Act Assessment rescheduled advocate not available Hi Marie Your email has been forwarded to CCBU regarding the pending financial re- assessment to assess for contribution towards care and outstanding payments. Regards Dee From: Marie Brown <mariembrown@hotmail.com> Sent: 17 November 2022 11:07 To: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>; Jackie Taylor <jackie_taylor@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com Subject: Re: Home visit to complete Care Act Assessment rescheduled advocate not available CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Thank you Deshrine. I was paid pip last Thursday and haven't engaged extra help the last few weeks soi have the full amount of pip ring fenced to makea contribution for costs if there isa system in place for me to transfer it? Regards, Mature Regards, Marie ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Thursday, November 17, 2022 9:17:38 AM To: Marie Brown <mariembrown@hotmail.com>; Jackie Taylor <jackie_taylor@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com> Subject: RE: Home visit to complete Care Act Assessment rescheduled advocate not available Hi Marie The 18/11/2022 at 2pm is confirmed to complete the Care Act Assessment. The emergency short term provision package of care that commenced on the 08/11/2022 will also be reviewed. (POC consist of daily support and assistance with personal care, nutritional needs and weekly laundry assistance). Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266 From: Marie Brown <mariembrown@hotmail.com> Sent: 17 November 2022 06:31 To: Jackie Taylor <jackie_taylor@sandwell.gov.uk>; Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: Re: Home visit to complete Care Act Assessment rescheduled advocate not available CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Is Friday at 2pm confirmed as finishing the assessment? I need to block out the time on my calendar if so, and notify my manager I'll be unavailable. Regards, Marie ________________________________ From: Jackie Taylor <jackie_taylor@sandwell.gov.uk> Sent: Sunday, November 13, 2022 8:19:08 PM To: Marie Brown <mariembrown@hotmail.com>; Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com>; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: RE: Home visit to complete Care Act Assessment rescheduled advocate not available Good Evening Marie I hope you are well. I have been trying for sometime to understand from the Council exactly what support and intervention you are receiving. I understand the your social worker has recently visited you. Moreover, I understand that the fire hazard has now been resolved. For me as the Elected Councillor involved I want to be able to sit around the table with all agencies involved in order to get the best outcomes for you. As you have contacted me I want to be able to support you in the best way I know how. Finally, it would be useful if you give permission for me to liaise with Sandwell professionals in order to do so. Kind Regards Cllr J Taylor Deputy Mayor of Sandwell Cllr Jackie Taylor Greets Green and Lyng jackie_taylor@sandwell.gov.uk <mailto:jackie_taylor@sandwell.gov.uk> mobile:07813364299 Twitter: JackieTVillia Facebook: Jacqueline Taylor From: Marie Brown <mariembrown@hotmail.com> Sent: 12 November 2022 05:57 To: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: mrschidzomba@hotmail.com; Jackie Taylor <jackie_taylor@sandwell.gov.uk>; Bev Mountain <Bev_Mountain@sandwell.gov.uk> Subject: Re: Home visit to complete Care Act Assessment rescheduled advocate not available CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Could someone/anyone please tell me how much I need to contribute to the cost of this agency so that I can either pay by standing order or put money into a digital jar in preparation? I'm still having to pay for laundry help this weekend to get caught up, shopping assistance etc so please take that into account. I need a third party present because I cannot deal with your leading questions Deshrine, you don't understand my cognitive challenges yet. Example is when we were talking about how I would cope over the weekend before care was in place. I had communicated in writing with everyone that I was out of money for take aways etc flat broke, not able to buy anything more. When asking me what I would do for meals Deshrine asked what are called leading questions: you can order food right? You can use the justeat app on your phone right? How do you usually order? You use the app? So you can use that right? I try to counter when that happens because I understand and can recognise leading questions. But when challenged I falter because I can't process fast enough and my memory struggles. There is a different between being able to do something physically and being able to do it financially. YES i am able to, but I had already communicated in writing I could not afford to. I ordered meals that weekend, I had to use my Bills account to pay, the bills money I had gone hungry to ringfence. I had meals that weekend, but on 1st November my bills went out, and many bounced. My first day of work was spent feeling grubby and unclean and then trying to work out WHY the bills had bounced, WHERE the bills money was and when I realised what I had done I had to borrow money to cover the bills. Added stress I could have done without. 04/11 I got paid and I repaid my friends loan, i started that pay period nearly Β£70 below what I had budgeted. That is a lot of money to someone in my situation. Two weeks groceries, two weeks diesel, internet home phone and mobile phone monthly bills combined! It was only yesterday when you again used leading questions but this time face to face, that I realised why the phone calls that Friday had been so challenging for me. I'm not angry, they are a legitimate form of questions, I have made a mental note to request the question be changed to a different type in future when I spot that type of question being used. Way too confusing for meπ±π€― Christina I'm frustrated because you chose the day and time, and it was because your availability was full there has been a two week delay. Deshrine drove all the way here and now needs to book out more time to revisit, I had set my work time and rest time around the meeting. I understand everyone is busy, but can I please remind you this is my LIFE we are trying to get back on track. Every delay hurts. I am, as ever, willing to travel to expedite things. I can attend the council house or local office etc. Regards, Marie ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Friday, November 11, 2022 11:15:49 AM To: mariembrown@hotmail.com <mariembrown@hotmail.com> Cc: mrschidzomba@hotmail.com <mrschidzomba@hotmail.com> Subject: Home visit to complete Care Act Assessment rescheduled advocate not available Hi Marie Re: Continuation of the Care Act 2014 Assessment of needs (11/11/2022) Just to confirm conversations following my visit to you today (11/11/2022) at 10.30am as planned and agreed to complete your Care Act Assessment of care and support needs, a continuation from my initial visit to you on the 25/10/2022. You informed me that your advocate was in London today and that she would not be present to support you today. In an agreement with you, for these reasons we agreed that the assessment would not proceed without your advocate present and for this assessment to be rescheduled and that you would email me your availability. I wait for your email with dates and times. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266
13 March 2023Pohwer Advocate assigned to Marie BrownDeshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>EMAIL
From
Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>
To
"mariembrown@hotmail.com" <mariembrown@hotmail.com>
CC
"Elizabeth.deegan@aspire.org.uk" <Elizabeth.deegan@aspire.org.uk>
BCC
β
Subject
Pohwer Advocate assigned to Marie Brown
Message
Hi Marie Re: Pohwer Advocate Following the MDT meeting held you consented to be referred for an advocate for support. This is to inform you that you have been assigned an Independent Advocate from Pohwer named Omotayo Ogedengbe. She will contact you shortly to arrange an appointment to meet with you. Once she has met with you as agreed from the MDT a follow up meeting will be held to discuss your needs assessment and support plan. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266
14 March 2023Care Act advocacy supportOmotayo Ogedengbe <O.Ogedengbe@pohwer.net>EMAIL
From
Omotayo Ogedengbe <O.Ogedengbe@pohwer.net>
To
"mariembrown@hotmail.com" <mariembrown@hotmail.com>
CC
β
BCC
β
Subject
Care Act advocacy support
Message
Good Morning Marie, Hope you are well. I have been allocated the care act case refereed to POhWER by Deshrine, social worker. I was informed by Deshrine that you consented to this referral. Please can we meet up to discuss this case and how best to support you. You can give me your availability and I can give you a call if that is okay with you. Looking forward to hearing from you. Kind regards Omotayo Omotayo Ogedengbeβ Independent Advocate Email: pohwer@pohwer.net Telephone: 0300 456 2370 Facsimile: 0300 456 2365 Minicom: 0300 456 2364 Website: www.pohwer.net Facebook: https://www.facebook.com/empohwerwestmidlands/ <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.facebook.com%2Fempohwerwestmidlands%2F&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=MiqTx3Q3H1YEkfdiZTEOSmuVAQSOzrY5rXZaztVpXnc%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.facebook.com%2FPOhWER.net%2F&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=5jtk5UiuzKaHs7U0KYJlI3ZvUR0fk%2FRctXJiCPsoq4E%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.linkedin.com%2Fcompany%2Fpohwer%2F&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=Cjslv2NJ5XO69wQQhRVDjL0aCm7r0wzQYorcF2IlpdY%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Ftwitter.com%2FPOhWERadvocacy&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=eQtrhuSGevWuUM8HjJK4eJQt11qDhQm6rgoPWuGdd20%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.youtube.com%2Fuser%2FPOhWERadvocacy&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=R9nUL8i0PqpYyuPSolRTM7HjEIt2QO304wXrTbJp9kQ%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.instagram.com%2Fpohweradvocacy%2F&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=NDEMNglrtniGtr4uZa%2B2aRsRkfeuyvtdytt%2BGm08JYg%3D&reserved=0> Take part in our Human Rights Survey β <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.surveymonkey.co.uk%2Fr%2FPOhWER2022HumanRightsSurvey&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=xsMtIMAJsAanwO4r%2BJv97qa2kxNoqBfLL647rdO2A%2B0%3D&reserved=0> Through fundraising <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.pohwer.net%2Ffundraising&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=sBeilahQQcGbihSTGMrjbm%2BaKrqjeX03J566Kx2hWfI%3D&reserved=0> you can help empower the most vulnerable people in the community to uphold their rights and get their voice heard. β Read about our Impact in 2021 - 2022 β <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.pohwer.net%2Four-impact&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=i9wRfW5XfGBBfk82UnGyR7iTXJFub1irExh0RPT%2BNfo%3D&reserved=0> How did we do today? 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16 March 2023FW: Pohwer Advocate assigned to Marie BrownDeshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>EMAIL
From
Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>
To
"mariembrown@hotmail.com" <mariembrown@hotmail.com>
CC
"samantha@diamondhomecare.co.uk" <samantha@diamondhomecare.co.uk>
BCC
β
Subject
FW: Pohwer Advocate assigned to Marie Brown
Message
Hi Marie
Just to reiterate from the MDT meeting we have referred you to Pohwer for an advocate as per email below and once she has introduced herself and discussed your Care Act 2014 Assessment with you, we can move forward to arrange a suitable date and time to meet with you to discuss following recommendations from the MDT meeting.
Samantha I have copied you in for your information as I am aware of the email forwarded to you as attached above.
Regards
Dee
Deshrine Burgher
Social Worker
Adult Social Care
Sandwell Metropolitan Borough Council
Tel: 0121 569 2266
From: Marie Brown <mariembrown@hotmail.com>
Sent: 16 March 2023 08:05
To: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>
Cc: Elizabeth.deegan@aspire.org.uk
Subject: Re: Pohwer Advocate assigned to Marie Brown
CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe.
thank you
Regards,
Marie Brown
________________________________
From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>
Sent: Monday, March 13, 2023 11:16:05 AM
To: mariembrown@hotmail.com <mariembrown@hotmail.com>
Cc: Elizabeth.deegan@aspire.org.uk <Elizabeth.deegan@aspire.org.uk>
Subject: Pohwer Advocate assigned to Marie Brown
Hi Marie
Re: Pohwer Advocate
Following the MDT meeting held you consented to be referred for an advocate for support. This is to inform you that you have been assigned an Independent Advocate from Pohwer named Omotayo Ogedengbe. She will contact you shortly to arrange an appointment to meet with you. Once she has met with you as agreed from the MDT a follow up meeting will be held to discuss your needs assessment and support plan.
Regards
Dee
Deshrine Burgher
Social Worker
Adult Social Care
Sandwell Metropolitan Borough Council
Tel: 0121 569 2266
>From "mariembrown@hotmail.com" Thu Mar 16 07:09:06 2023
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CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe.
hi Samantha
Gurpreet came to do my cal this morning but as i havent hear from you yet about my concerns i asked her to leave. She advised me she is scheduled to come at lunch. could yoy please change his until we have a resolution?
i cant afford to keep repairing/replacing thing and im still ill with gastro, I wold like to be sure that more care will e taken by Gurpreet of me and my property, could you plese advise steps taken to ensure this?
Regards,
Marie Brown
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<div dir="auto">hi Samantha</div>
<div dir="auto"><br>
</div>
<div dir="auto">Gurpreet came to do my cal this <span>morning but as i havent hear from you yet about my concerns i asked her to leave. She advi<span>sed me she is sched<span>uled to come at lunch. could yoy please change his until we have a resolution?</span></span></span></div>
<div dir="auto"><span><span><span><br>
</span></span></span></div>
<div dir="auto"><span><span><span>i cant afford to keep repairing/replacing thing and im still ill with gastro, I wold like to be sure that more care will e taken by Gurpreet of me and my property, could you plese advise steps taken to ensure this?<span></span></span></span></span></div>
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<div dir="auto">Regards,</div>
<div dir="auto">Marie Brown</div>
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>From "mariembrown@hotmail.com" Thu Mar 16 08:04:10 2023
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hello Deshrine,
would like assistance to access this please and walk in the swimming baths as per my physio advice (Viz from icare). i still cannot understamd the breakdown of my care plan - the hours offered. neither could jim, elizabeth or citizens advice. i have asked you a few times to clarify this but have not received a clearer breakdown.
my faily and friends are NNOT carers, sometimes i dont see them for a couple of weeks. to be independent i need help to get out and about without waiting for people to have tie to visit.
We put together a chart to clarify the help i am requesting both now AND after the kitchen is adapted for e to cook independentlyand safely. cold you please advise whether this is cose enoh to what you summarised? This care plan would mean i can turn ALL of the #90 a week PIP care component can pay for this and i can top up for the arrears if its higher total. it solves both big problems.
Regards,
Marie Brown
________________________________
From: DHEER, Kiran (HOLYHEAD PRIMARY HEALTH CARE CENTRE) <kiran.dheer1@nhs.net>
Sent: Tuesday, 14 March 2023, 13:08
To: mariembrown@hotmail.com <mariembrown@hotmail.com>
Subject: Activities Time table
Good Afternoon,
Birmingham Settlement are offering different activities from their three hubs to find out more click on the link below:
https://www.birminghamsettlement.org.uk/506174-2/ <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.birminghamsettlement.org.uk%2F506174-2%2F&data=05%7C01%7C%7Cb664228e6c9c4eb0243208db248d3eed%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143961292855803%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=%2BRGFDQh4JQHl1aWgc%2BEFHz%2Fk0bw6OqyIYEX3lUhly6w%3D&reserved=0>
Regards
Kiran Dheer
Social Prescribing Link Worker
Email: kiran.dheer1@nhs.net
Working Hours: Tuesdays ONLY, 9am -5pm
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<div dir="auto">hello Deshrine, </div>
<div dir="auto"><br>
</div>
<div dir="auto"> would like assistance to access this please and walk in the swimming baths as per my physio advice (Viz from icare). i still cannot understamd the breakdown of my care plan - the hours offered. neither could jim, elizabeth or citizens advice.
i have asked you a few times to clarify this but have not received a clearer breakdown.<span></span><span></span><span></span></div>
<div dir="auto"><br>
</div>
<div dir="auto">my faily and friends are NNOT carers, sometimes i dont see them for a couple of weeks. to be indepe<span>ndent i need help to get out and about without waiting for people to have tie to visit.<span></span></span></div>
<div dir="auto"><span><br>
</span></div>
<div dir="auto"><span>We put together a chart to clarify the help i am requesting both now AND after the kitchen is adapted for e to cook indep<span>endentlyand safely. cold you please advise whether this is cose enoh to what you summarised? This care plan
would mean i can turn ALL of the #90 a week PIP care component can pay for this and i can top up for the arrears if its higher total. it solves both big prob<span>lems.</span></span><span></span></span></div>
<div id="ms-outlook-mobile-signature" dir="auto">
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<div dir="auto">Regards,</div>
<div dir="auto">Marie Brown</div>
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<div id="divRplyFwdMsg" style="font-size: 11pt;"><strong>From:</strong> DHEER, Kiran (HOLYHEAD PRIMARY HEALTH CARE CENTRE) <kiran.dheer1@nhs.net><br>
<strong>Sent:</strong> Tuesday, 14 March 2023, 13:08<br>
<strong>To:</strong> mariembrown@hotmail.com <mariembrown@hotmail.com><br>
<strong>Subject:</strong> Activities Time table<br>
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<br>
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Good Afternoon,</div>
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Birmingham Settlement are offering different activities from their three hubs to find out more click on the link below:</div>
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<span style="color:rgb(12,100,192)">Regards</span></div>
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<span style="color:rgb(12,100,192); font-family:Impact,Charcoal,sans-serif; font-size:12pt">Kiran Dheer</span><br>
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<span style="color:rgb(12,100,192); font-family:Impact,Charcoal,sans-serif">Social Prescribing Link Worker</span></div>
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<span style="color:rgb(12,100,192)">Email: kiran.dheer1@nhs.net</span></div>
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Xy1fLS0tCgo17 March 2023Re: Care Act advocacy supportMarie Brown <mariembrown@hotmail.com>EMAIL
From
Marie Brown <mariembrown@hotmail.com>
To
"Omotayo Ogedengbe"
CC
β
BCC
β
Subject
Re: Care Act advocacy support
Message
Hello Omotayo Thank you. Nice to e-meet you. The main problem is no one can understand the summary at the bottom of my care plan, so we don't understand how many hrs care Deshrine is offering or when. I have been to citizens advice, had help from aspire, and several friends so I hope you can understand this summary to save time? I have had help going through the rest and correcting things and understanding the rest! I JUST need a breakdown of these hrs offered. I've attached the full assessment but deshrine has not told me the password for this version but she may give it to you if you ask so you can view it. I have attached the summary as a pdf , do you understand how many hours deshrine is offering to help me be independent? If you aren't able to understand that breakdown a visit would be pointless for this issue's and with so many other issues to address I would rather not waste a valuable session with you , I've asked for anclearer breakdown SEVEN times now. I manage my diary so if you give me 48 hrs notice I can be free except daily team calls as follows 8.30 to 9am 3pm to 3.30pm And OT is coming next week Thurs 11.30am for kitchen assessment I look forward to meeting tou Regards, Marie Brown ________________________________ From: Omotayo Ogedengbe <O.Ogedengbe@pohwer.net> Sent: Tuesday, March 14, 2023 10:07:34 AM To: mariembrown@hotmail.com <mariembrown@hotmail.com> Subject: Care Act advocacy support Good Morning Marie, Hope you are well. I have been allocated the care act case refereed to POhWER by Deshrine, social worker. I was informed by Deshrine that you consented to this referral. Please can we meet up to discuss this case and how best to support you. You can give me your availability and I can give you a call if that is okay with you. Looking forward to hearing from you. Kind regards Omotayo Omotayo Ogedengbeβ Independent Advocate Email: pohwer@pohwer.net Telephone: 0300 456 2370 Facsimile: 0300 456 2365 Minicom: 0300 456 2364 Website: www.pohwer.net Facebook: https://www.facebook.com/empohwerwestmidlands/ <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.facebook.com%2Fempohwerwestmidlands%2F&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=MiqTx3Q3H1YEkfdiZTEOSmuVAQSOzrY5rXZaztVpXnc%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.facebook.com%2FPOhWER.net%2F&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=5jtk5UiuzKaHs7U0KYJlI3ZvUR0fk%2FRctXJiCPsoq4E%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.linkedin.com%2Fcompany%2Fpohwer%2F&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=Cjslv2NJ5XO69wQQhRVDjL0aCm7r0wzQYorcF2IlpdY%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Ftwitter.com%2FPOhWERadvocacy&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=eQtrhuSGevWuUM8HjJK4eJQt11qDhQm6rgoPWuGdd20%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.youtube.com%2Fuser%2FPOhWERadvocacy&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=R9nUL8i0PqpYyuPSolRTM7HjEIt2QO304wXrTbJp9kQ%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.instagram.com%2Fpohweradvocacy%2F&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=NDEMNglrtniGtr4uZa%2B2aRsRkfeuyvtdytt%2BGm08JYg%3D&reserved=0> Take part in our Human Rights Survey β <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.surveymonkey.co.uk%2Fr%2FPOhWER2022HumanRightsSurvey&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=xsMtIMAJsAanwO4r%2BJv97qa2kxNoqBfLL647rdO2A%2B0%3D&reserved=0> Through fundraising <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.pohwer.net%2Ffundraising&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=sBeilahQQcGbihSTGMrjbm%2BaKrqjeX03J566Kx2hWfI%3D&reserved=0> you can help empower the most vulnerable people in the community to uphold their rights and get their voice heard. β Read about our Impact in 2021 - 2022 β <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.pohwer.net%2Four-impact&data=05%7C01%7C%7C02a96804e0cb4ba483cd08db2473f113%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638143852652476941%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=i9wRfW5XfGBBfk82UnGyR7iTXJFub1irExh0RPT%2BNfo%3D&reserved=0> How did we do today? 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17 March 2023Automatic reply: Care Act advocacy supportOmotayo Ogedengbe <O.Ogedengbe@pohwer.net>EMAIL
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Omotayo Ogedengbe <O.Ogedengbe@pohwer.net>
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Marie Brown <mariembrown@hotmail.com>
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Thank you for contacting me. I am out of office to be back on Tuesday,21/03/23. If you have any urgent request, please call Pohwer help hub on this number - 030045623760
17 March 2023Re: Pohwer Advocate assigned to Marie BrownMarie Brown <mariembrown@hotmail.com>EMAIL
From
Marie Brown <mariembrown@hotmail.com>
To
"Deshrine Burgher"
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Could you please send aclearer breakdown. Citizens advice couldn't make sense of this either. Nor Elizabeth from aspire or several friends. Regards, Marie Brown ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Thursday, March 16, 2023 9:29:51 AM To: mariembrown@hotmail.com <mariembrown@hotmail.com> Cc: samantha@diamondhomecare.co.uk <samantha@diamondhomecare.co.uk> Subject: FW: Pohwer Advocate assigned to Marie Brown Hi Marie Just to reiterate from the MDT meeting we have referred you to Pohwer for an advocate as per email below and once she has introduced herself and discussed your Care Act 2014 Assessment with you, we can move forward to arrange a suitable date and time to meet with you to discuss following recommendations from the MDT meeting. Samantha I have copied you in for your information as I am aware of the email forwarded to you as attached above. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266 From: Marie Brown <mariembrown@hotmail.com> Sent: 16 March 2023 08:05 To: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: Elizabeth.deegan@aspire.org.uk Subject: Re: Pohwer Advocate assigned to Marie Brown CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. thank you Regards, Marie Brown ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Monday, March 13, 2023 11:16:05 AM To: mariembrown@hotmail.com <mariembrown@hotmail.com> Cc: Elizabeth.deegan@aspire.org.uk <Elizabeth.deegan@aspire.org.uk> Subject: Pohwer Advocate assigned to Marie Brown Hi Marie Re: Pohwer Advocate Following the MDT meeting held you consented to be referred for an advocate for support. This is to inform you that you have been assigned an Independent Advocate from Pohwer named Omotayo Ogedengbe. She will contact you shortly to arrange an appointment to meet with you. Once she has met with you as agreed from the MDT a follow up meeting will be held to discuss your needs assessment and support plan. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266
17 March 2023RE: Pohwer Advocate assigned to Marie BrownDeshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>EMAIL
From
Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk>
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Marie Brown <mariembrown@hotmail.com>
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Hi Marie Once the advocate form Pohwer has made contact with you to introduce herself and has discussed your Care Act 2014 Assessment, a follow up meeting will take place with you a face to face visit to discuss the breakdown of the support plan. An email response would not be beneficial or sufficient. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266 From: Marie Brown <mariembrown@hotmail.com> Sent: 17 March 2023 07:54 To: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Subject: Re: Pohwer Advocate assigned to Marie Brown CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Could you please send aclearer breakdown. Citizens advice couldn't make sense of this either. Nor Elizabeth from aspire or several friends. Regards, Marie Brown ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Thursday, March 16, 2023 9:29:51 AM To: mariembrown@hotmail.com <mariembrown@hotmail.com> Cc: samantha@diamondhomecare.co.uk <samantha@diamondhomecare.co.uk> Subject: FW: Pohwer Advocate assigned to Marie Brown Hi Marie Just to reiterate from the MDT meeting we have referred you to Pohwer for an advocate as per email below and once she has introduced herself and discussed your Care Act 2014 Assessment with you, we can move forward to arrange a suitable date and time to meet with you to discuss following recommendations from the MDT meeting. Samantha I have copied you in for your information as I am aware of the email forwarded to you as attached above. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266 From: Marie Brown <mariembrown@hotmail.com> Sent: 16 March 2023 08:05 To: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: Elizabeth.deegan@aspire.org.uk Subject: Re: Pohwer Advocate assigned to Marie Brown CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. thank you Regards, Marie Brown ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Monday, March 13, 2023 11:16:05 AM To: mariembrown@hotmail.com <mariembrown@hotmail.com> Cc: Elizabeth.deegan@aspire.org.uk <Elizabeth.deegan@aspire.org.uk> Subject: Pohwer Advocate assigned to Marie Brown Hi Marie Re: Pohwer Advocate Following the MDT meeting held you consented to be referred for an advocate for support. This is to inform you that you have been assigned an Independent Advocate from Pohwer named Omotayo Ogedengbe. She will contact you shortly to arrange an appointment to meet with you. Once she has met with you as agreed from the MDT a follow up meeting will be held to discuss your needs assessment and support plan. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266
17 March 2023Re: Pohwer Advocate assigned to Marie BrownMarie Brown <mariembrown@hotmail.com>EMAIL
From
Marie Brown <mariembrown@hotmail.com>
To
"Deshrine Burgher"
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"Jackie Taylor"
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Re: Pohwer Advocate assigned to Marie Brown
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Deshrine you are wasting time we could be moving forward. NO-ONE understands your breakdown. Could you please clarify it justify why you are not willing to break down the care offered in an alternative or clearer way? I have reached out to my advocate as you advised, but if she doesn't understand the breakdown either what will be your response? Regards, Marie ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Friday, March 17, 2023 9:25:08 AM To: Marie Brown <mariembrown@hotmail.com> Cc: Elizabeth.deegan@aspire.org.uk <Elizabeth.deegan@aspire.org.uk> Subject: RE: Pohwer Advocate assigned to Marie Brown Hi Marie Once the advocate form Pohwer has made contact with you to introduce herself and has discussed your Care Act 2014 Assessment, a follow up meeting will take place with you a face to face visit to discuss the breakdown of the support plan. An email response would not be beneficial or sufficient. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266 From: Marie Brown <mariembrown@hotmail.com> Sent: 17 March 2023 07:54 To: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Subject: Re: Pohwer Advocate assigned to Marie Brown CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Could you please send aclearer breakdown. Citizens advice couldn't make sense of this either. Nor Elizabeth from aspire or several friends. Regards, Marie Brown ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Thursday, March 16, 2023 9:29:51 AM To: mariembrown@hotmail.com <mariembrown@hotmail.com> Cc: samantha@diamondhomecare.co.uk <samantha@diamondhomecare.co.uk> Subject: FW: Pohwer Advocate assigned to Marie Brown Hi Marie Just to reiterate from the MDT meeting we have referred you to Pohwer for an advocate as per email below and once she has introduced herself and discussed your Care Act 2014 Assessment with you, we can move forward to arrange a suitable date and time to meet with you to discuss following recommendations from the MDT meeting. Samantha I have copied you in for your information as I am aware of the email forwarded to you as attached above. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266 From: Marie Brown <mariembrown@hotmail.com> Sent: 16 March 2023 08:05 To: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Cc: Elizabeth.deegan@aspire.org.uk Subject: Re: Pohwer Advocate assigned to Marie Brown CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. thank you Regards, Marie Brown ________________________________ From: Deshrine Burgher <Deshrine_Burgher@sandwell.gov.uk> Sent: Monday, March 13, 2023 11:16:05 AM To: mariembrown@hotmail.com <mariembrown@hotmail.com> Cc: Elizabeth.deegan@aspire.org.uk <Elizabeth.deegan@aspire.org.uk> Subject: Pohwer Advocate assigned to Marie Brown Hi Marie Re: Pohwer Advocate Following the MDT meeting held you consented to be referred for an advocate for support. This is to inform you that you have been assigned an Independent Advocate from Pohwer named Omotayo Ogedengbe. She will contact you shortly to arrange an appointment to meet with you. Once she has met with you as agreed from the MDT a follow up meeting will be held to discuss your needs assessment and support plan. Regards Dee Deshrine Burgher Social Worker Adult Social Care Sandwell Metropolitan Borough Council Tel: 0121 569 2266
22 March 2023RE: Care Act advocacy supportOmotayo Ogedengbe <O.Ogedengbe@pohwer.net>EMAIL
From
Omotayo Ogedengbe <O.Ogedengbe@pohwer.net>
To
Marie Brown <mariembrown@hotmail.com>
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RE: Care Act advocacy support
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Hello Marie, Hope you are well. Thanks for getting back to me. It does appear from your email that you just need clarification on the hours the social services are providing for you.( clearer breakdown of support provision) If there are any other issues around your assessed needs and you need advocacy support , please do not hesitate to let me know. I will get in touch with Deshrine and get back to you. Kind regards Omotayo Omotayo Ogedengbeβ Independent Advocate Email: pohwer@pohwer.net Telephone: 0300 456 2370 Facsimile: 0300 456 2365 Minicom: 0300 456 2364 Website: www.pohwer.net Facebook: https://www.facebook.com/empohwerwestmidlands/ <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.facebook.com%2Fempohwerwestmidlands%2F&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815398824%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=SYVZ9WQNnk%2F1hDa0LAclJ7Xugn7encFd%2FdvVgHk5%2BJY%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.facebook.com%2FPOhWER.net%2F&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815398824%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=skrUg6vkpmAG9pIp%2F%2FJXNxZrPaMhLIQC%2BA8zLb%2B9gC4%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.linkedin.com%2Fcompany%2Fpohwer%2F&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815398824%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=qsxnYfUSe%2F4n2TmfgV60vcaQhMa8g1OPdteDj6RuYG0%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Ftwitter.com%2FPOhWERadvocacy&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815555047%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=%2F%2B88V5UN3cxZAqrIjH7Xg7JoF9XxrLZswgFgTnw0gK8%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.youtube.com%2Fuser%2FPOhWERadvocacy&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815555047%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=hXV3pkji2mM2y3tFlIbvOO0QinkGQ7UB55YFLOFXdig%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.instagram.com%2Fpohweradvocacy%2F&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815555047%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=ojqFHyCrQTg3ZKgomBxc97H4BvSkYOHr%2FHOn7XANpuQ%3D&reserved=0> Take part in our Human Rights Survey β <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.surveymonkey.co.uk%2Fr%2FPOhWER2022HumanRightsSurvey&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815555047%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=gVuUjzNBbtLgPAvHJRyaCTgOILjKkZFPDqCZ7HabUew%3D&reserved=0> Through fundraising <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.pohwer.net%2Ffundraising&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815555047%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=9XWx0dzCn2wBUWaF3FRkrJYGO2Gwi2uHOR8uPSJy%2BjE%3D&reserved=0> you can help empower the most vulnerable people in the community to uphold their rights and get their voice heard. β Read about our Impact in 2021 - 2022 β <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.pohwer.net%2Four-impact&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815555047%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=4JYeAvePiI8it3Xx1UA0gHNKM%2Fzrjc0yK%2FP0bfGEb58%3D&reserved=0> How did we do today? 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Internet e-mails are not necessarily secure POhWER does not accept responsibility for changes made to this message after it was sent. β Whilst all reasonable care has been taken to avoid the transmission of viruses, it is the responsibility of the recipient to ensure that the onward transmission, opening or use of this message and any attachments will not adversely affect its systems or data. No responsibility is accepted by POhWER in this regard and the recipient should carry out such virus and other checks as it considers appropriate. Consider the environment. Please do not print this eβmail unless you really need to From: Marie Brown <mariembrown@hotmail.com> Sent: 17 March 2023 07:52 To: Omotayo Ogedengbe <O.Ogedengbe@pohwer.net> Subject: Re: Care Act advocacy support Hello Omotayo Thank you. Nice to e-meet you. The main problem is no one can understand the summary at the bottom of my care plan, so we don't understand how many hrs care Deshrine is offering or when. I have been to citizens advice, had help from aspire, and several friends so I hope you can understand this summary to save time? I have had help going through the rest and correcting things and understanding the rest! I JUST need a breakdown of these hrs offered. I've attached the full assessment but deshrine has not told me the password for this version but she may give it to you if you ask so you can view it. I have attached the summary as a pdf , do you understand how many hours deshrine is offering to help me be independent? If you aren't able to understand that breakdown a visit would be pointless for this issue's and with so many other issues to address I would rather not waste a valuable session with you , I've asked for anclearer breakdown SEVEN times now. I manage my diary so if you give me 48 hrs notice I can be free except daily team calls as follows 8.30 to 9am 3pm to 3.30pm And OT is coming next week Thurs 11.30am for kitchen assessment I look forward to meeting tou Regards, Marie Brown ________________________________ From: Omotayo Ogedengbe <O.Ogedengbe@pohwer.net <mailto:O.Ogedengbe@pohwer.net> > Sent: Tuesday, March 14, 2023 10:07:34 AM To: mariembrown@hotmail.com <mailto:mariembrown@hotmail.com> <mariembrown@hotmail.com <mailto:mariembrown@hotmail.com> > Subject: Care Act advocacy support Good Morning Marie, Hope you are well. I have been allocated the care act case refereed to POhWER by Deshrine, social worker. I was informed by Deshrine that you consented to this referral. Please can we meet up to discuss this case and how best to support you. You can give me your availability and I can give you a call if that is okay with you. Looking forward to hearing from you. Kind regards Omotayo Omotayo Ogedengbeβ Independent Advocate Email: pohwer@pohwer.net <mailto:pohwer@pohwer.net> Telephone: 0300 456 2370 Facsimile: 0300 456 2365 Minicom: 0300 456 2364 Website: www.pohwer.net <https://emea01.safelinks.protection.outlook.com/?url=http%3A%2F%2Fwww.pohwer.net%2F&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815555047%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=bRp3Mfjvvyf%2BPYhLAEr%2BkhUMUXIgxay9DAFkW4urDCg%3D&reserved=0> Facebook: https://www.facebook.com/empohwerwestmidlands/ <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.facebook.com%2Fempohwerwestmidlands%2F&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815555047%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=aa4aEh5XRrYV4mFPqrHeqtDH%2BPhLJI1TkVfR%2B37TFNQ%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.facebook.com%2FPOhWER.net%2F&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815555047%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=Ej6wmX1bhVDTHgI%2BVUG3UOFd5cdvXhShfnl%2F9%2B3ay1c%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.linkedin.com%2Fcompany%2Fpohwer%2F&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815555047%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=ATTdFIIcN4XCrNufOUryzTBb%2Bad5AHHsix5BC8kklFk%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Ftwitter.com%2FPOhWERadvocacy&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815555047%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=%2F%2B88V5UN3cxZAqrIjH7Xg7JoF9XxrLZswgFgTnw0gK8%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.youtube.com%2Fuser%2FPOhWERadvocacy&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815555047%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=hXV3pkji2mM2y3tFlIbvOO0QinkGQ7UB55YFLOFXdig%3D&reserved=0> <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.instagram.com%2Fpohweradvocacy%2F&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815555047%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=ojqFHyCrQTg3ZKgomBxc97H4BvSkYOHr%2FHOn7XANpuQ%3D&reserved=0> Take part in our Human Rights Survey β <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.surveymonkey.co.uk%2Fr%2FPOhWER2022HumanRightsSurvey&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815555047%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=gVuUjzNBbtLgPAvHJRyaCTgOILjKkZFPDqCZ7HabUew%3D&reserved=0> Through fundraising <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.pohwer.net%2Ffundraising&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815555047%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=9XWx0dzCn2wBUWaF3FRkrJYGO2Gwi2uHOR8uPSJy%2BjE%3D&reserved=0> you can help empower the most vulnerable people in the community to uphold their rights and get their voice heard. β Read about our Impact in 2021 - 2022 β <https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.pohwer.net%2Four-impact&data=05%7C01%7C%7Cb2993425a14342f8e4b908db2ad8168d%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638150879815555047%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000%7C%7C%7C&sdata=4JYeAvePiI8it3Xx1UA0gHNKM%2Fzrjc0yK%2FP0bfGEb58%3D&reserved=0> How did we do today? 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20 February 2026I am sharing '260219 FORMAL NOTICE β SAFE DISCHARGE OBJECTION ADVOCACY REQUEST' with youMarie Meronym <mariemeronym@gmail.com>EMAIL
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Marie Meronym <mariemeronym@gmail.com>
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Elizabeth Myring-Brown <elizabeth.myring.brown@gmail.com>
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I am sharing '260219 FORMAL NOTICE β SAFE DISCHARGE OBJECTION ADVOCACY REQUEST' with you
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Hi mum, letter attached, you just need to edit your detail at the end of you are happy with it (I am π€) Copy and paste it into an email and send it to the email address on your letter. I'll include this in medicolegal stuff ππ½ Love you, Ree. X
20 February 2026I am sharing '260219 FORMAL NOTICE β SAFE DISCHARGE OBJECTION ADVOCACY REQUEST' with you"Marie Meronym"EMAIL
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"Marie Meronym"
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I am sharing '260219 FORMAL NOTICE β SAFE DISCHARGE OBJECTION ADVOCACY REQUEST' with you
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Hi Mum, Alex helped draft this, if you're happy with it edit your details at the end and then submit it to their email address. You can copy and paste it into the email or attach it as a word document, whichever you find easier. Love you Ree. X Marie Meronym Non-Chronological Records π§π½βπ«π DEI Concerns DEI Education Personal πΈ Instagram βοΈπ LinkedIn π§π½ββοΈ X πΉ YouTube
20 February 2026Re: I am sharing '260219 FORMAL NOTICE β SAFE DISCHARGE OBJECTION ADVOCACY REQUEST' with youElizabeth Myring-Brown <elizabeth.myring.brown@gmail.com>EMAIL
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Elizabeth Myring-Brown <elizabeth.myring.brown@gmail.com>
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Marie Meronym <mariemeronym@gmail.com>
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Re: I am sharing '260219 FORMAL NOTICE β SAFE DISCHARGE OBJECTION ADVOCACY REQUEST' with you
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That letter says it all. On Fri, 20 Feb 2026, 09:08 Marie Meronym, <mariemeronym@gmail.com> wrote: > Hi mum, letter attached, you just need to edit your detail at the end of > you are happy with it (I am π€) > > Copy and paste it into an email and send it to the email address on your > letter. > > I'll include this in medicolegal stuff ππ½ > > Love you, > Ree. X > > >
23 February 2026Urgent: Request for Advocacy Support and Safe Discharge Planning (Current Inpatient)Marie Meronym <MarieMeronym@outlook.com>EMAIL
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Marie Meronym <MarieMeronym@outlook.com>
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"PATIENT-EXPERIENCE PALS"
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"Alex Garven"
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Urgent: Request for Advocacy Support and Safe Discharge Planning (Current Inpatient)
Message
Dear PALS Team, I am currently an inpatient at Midland Metropolitan Hospital and am seeking assistance regarding discharge planning and access to advocacy support. Ward staff have indicated that I do not qualify for an advocate because I can communicate verbally and do not yet have a formal autism/ADHD diagnosis recorded in my NHS notes. However, I experience significant difficulty managing complex information, paperwork, and coordination between services due to neurodevelopmental and physical conditions. These difficulties directly affect my ability to participate fully in discharge decisions. I am not refusing discharge. My concern is that my home environment currently presents significant accessibility barriers, including issues with safe toileting, kitchen use, and fall risk. These matters are known to external agencies and are being addressed with the support of an independent advocates whose contact details are below. I offered to supply documentation regarding my autism assessment and housing-related risks, but this was declined so I've attached it here with appropriate escalations to assistant CEO of SMBC whose promised response is outstanding - please note the date. I am requesting: Clarification of my entitlement to advocacy support under the Care Act 2014 and hospital discharge guidance Assistance to ensure I can participate effectively in discharge planning Liaison with my external advocate, Elizabeth Deegan (Aspire) Helen Charles (Sandwell Advocacy) 01215208070 Jekaterina (West Midlands Fire Service) 07973810556 Maria Wiseman (Community Offer) email attached with contact details Assurance that discharge will be to a safe environment with appropriate support in place I am keen to work cooperatively with the team and achieve a safe, sustainable discharge plan. I would be grateful if this request could be recorded formally and reviewed as soon as possible. Thank you for your assistance. Yours sincerely, Marie Meronym Non-Chronological Records π§π½βπ«π DEI Concerns DEI Education Personal πΈ Instagram βοΈπ LinkedIn π§π½ββοΈ X πΉ YouTube
23 February 2026Fw: Urgent: Request for Advocacy Support and Safe Discharge Planning (Current Inpatient)"Marie Meronym"EMAIL
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"Marie Meronym"
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Fw: Urgent: Request for Advocacy Support and Safe Discharge Planning (Current Inpatient)
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Marie Meronym Non-Chronological Records π§π½βπ«π DEI Concerns DEI Education Personal πΈ Instagram βοΈπ LinkedIn π§π½ββοΈ X πΉ YouTube From: Marie Meronym <MarieMeronym@outlook.com> Sent: Monday, February 23, 2026 2:26:57 PM To: PATIENT-EXPERIENCE (SANDWELL AND WEST BIRMINGHAM HOSPITALS NHS TRUST) PALS <swbh.patient-experience@nhs.net>; swbh.tr.patient-experience@nhs.net PALS <swbh.tr.patient-experience@nhs.net> Cc: Alex Garven <alex.garven@expresssolicitors.co.uk> Subject: Urgent: Request for Advocacy Support and Safe Discharge Planning (Current Inpatient) Dear PALS Team, I am currently an inpatient at Midland Metropolitan Hospital and am seeking assistance regarding discharge planning and access to advocacy support. Ward staff have indicated that I do not qualify for an advocate because I can communicate verbally and do not yet have a formal autism/ADHD diagnosis recorded in my NHS notes. However, I experience significant difficulty managing complex information, paperwork, and coordination between services due to neurodevelopmental and physical conditions. These difficulties directly affect my ability to participate fully in discharge decisions. I am not refusing discharge. My concern is that my home environment currently presents significant accessibility barriers, including issues with safe toileting, kitchen use, and fall risk. These matters are known to external agencies and are being addressed with the support of an independent advocates whose contact details are below. I offered to supply documentation regarding my autism assessment and housing-related risks, but this was declined so I've attached it here with appropriate escalations to assistant CEO of SMBC whose promised response is outstanding - please note the date. I am requesting: Clarification of my entitlement to advocacy support under the Care Act 2014 and hospital discharge guidance Assistance to ensure I can participate effectively in discharge planning Liaison with my external advocate, Elizabeth Deegan (Aspire) Helen Charles (Sandwell Advocacy) 01215208070 Jekaterina (West Midlands Fire Service) 07973810556 Maria Wiseman (Community Offer) email attached with contact details Assurance that discharge will be to a safe environment with appropriate support in place I am keen to work cooperatively with the team and achieve a safe, sustainable discharge plan. I would be grateful if this request could be recorded formally and reviewed as soon as possible. Thank you for your assistance. Yours sincerely, Marie Meronym Non-Chronological Records π§π½βπ«π DEI Concerns DEI Education Personal πΈ Instagram βοΈπ LinkedIn π§π½ββοΈ X πΉ YouTube
26 February 2026 FORMAL COMPLAINT β Unsafe Discharge (24 Feb 2026), Lack of Advocacy, Exclusion from Care Planning, and Ongoing Risk (Re: Acknowledgement of Your Recent Concern E25/0661)Marie Meronym <MarieMeronym@outlook.com>EMAIL
From
Marie Meronym <MarieMeronym@outlook.com>
To
"PALS (SANDWELL AND WEST BIRMINGHAM HOSPITALS NHS TRUST)" <swb-tr.pals@nhs.net>, "PATIENT-EXPERIENCE (SANDWELL AND WEST BIRMINGHAM HOSPITALS NHS TRUST) PALS" <swbh.patient-experience@nhs.net>
CC
Alex Garven <alex.garven@expresssolicitors.co.uk>
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β
Subject
FORMAL COMPLAINT β Unsafe Discharge (24 Feb 2026), Lack of Advocacy, Exclusion from Care Planning, and Ongoing Risk (Re: Acknowledgement of Your Recent Concern E25/0661)
Message
Dear PALS Team, I am submitting a formal complaint regarding my cancelled discharge on Tuesday 24 February 2026, which I consider unsafe, poorly coordinated, and conducted without my meaningful involvement or access to advocacy. This was the third unsafe discharge within three months: 13 September 2025 β Unsafe discharge from Rowley Regis Hospital 22 January 2026 β Unsafe discharge from Midland Metropolitan Hospital 24 February 2026 β Current unsafe discharge Following the September discharge, the risk at my bungalow was so severe that I lived in my car/caravan for several weeks to avoid falls. After the January discharge, I was subjected to four daily care visits simply to use the toilet due to lack of essential adaptations, resulting in dehydration, loss of dignity, and deterioration in health. Despite this documented history, no effective measures were implemented to prevent recurrence. Lack of Safe Environment My home currently lacks essential accessibility features, including grab rails and a functioning kitchen sink/tap. As a result, I cannot safely: * Toilet independently * Prepare food * Obtain water * Move safely within the property * Meet basic daily needs without risk of falls or injury Discharging me to such an environment places me at foreseeable risk of harm. π§π½βπ¦½I require a wheelchair-accessible environment. A care package cannot substitute for fundamental environmental safety. Lack of Advocacy I repeatedly requested an advocate prior to discharge due to autism and ADHD affecting my ability to process complex decisions under stress. These requests were refused. βοΈUnder the Care Act 2014, individuals who have substantial difficulty in participating in care planning are entitled to independent advocacy where no appropriate person is available to support them. No such advocacy was provided. Exclusion from Care Planning I was not meaningfully involved in discharge planning and was not provided with a clear, agreed plan that addressed my safety concerns. I also experienced significant difficulty obtaining copies of my discharge documentation. New Concerns Following Discharge Today, I received: * Text messages regarding a repair appointment I was not informed about * Contact from a care agency stating they had been commissioned to provide care at my home, again without my knowledge or agreement This indicates ongoing decision-making about my care and housing without consultation or consent. Unsuitable Care Model I do not require daily care visits and cannot tolerate them due to autism and ADHD. The only support I am requesting is: * Two sessions per week β four hours per session For assistance with: * Paperwork, budgeting, and phone calls * Grocery shopping for heavy items * Household tasks (bedding, sweeping, mopping) * Access to community and health activities such as swimming and yoga Daily personal care is not appropriate and has previously caused harm. Legal and Professional Duties The discharge and subsequent arrangements appear inconsistent with: NHS duty of safe discharge βοΈCare Act 2014 duties to assess needs and provide appropriate support βοΈEquality Act 2010 obligations to make reasonable adjustments for disability Principles of person-centred care Trauma-informed practice, which I have requested in writing for over a year Discharging a patient to an environment where they cannot meet basic needs safely constitutes foreseeable risk and potential neglect of duty of care. Requested Actions I request: * Immediate review of the discharge decision * Written confirmation that my safety concerns are formally recorded * Involvement of an independent advocate in all future planning * A safe discharge plan based on environmental accessibility, not forced dependency * Full involvement in decisions about my care and home * A formal response to this complaint I am not refusing support. I am requesting safe, appropriate, and sustainable arrangements that enable independence rather than ongoing risk. Please treat this complaint as urgent. Kind regards, Marie Meronym (Brown) NHS number 608 276 5451 / DOB 18/09/1975 Ward A7 Side room 13 Marie Meronym π§π½βπ¦½π§ Euan's Guide<https://www.euansguide.com/venues/mcdonalds-oldbury-81> ππ§π½βπ«Facebook<https://www.facebook.com/share/16Kxzf4Bd6/> π§π½βπ¦½π§ Google Maps<https://maps.app.goo.gl/9ZvzULpnYPoumZd7A?g_st=ac> πΈInstagram<https://www.instagram.com/wobblywanderer.sandwelltenant?igsh=MWk1Y2c2bW8zcDl3cg==> π§π½βπ«LinkedIn<https://www.linkedin.com/in/mariemeronymsmbctenant?utm_source=share&utm_campaign=share_via&utm_content=profile&utm_medium=android_app> βοΈX<https://x.com/SandwellWoman?t=-L5j4M0dS90Mqzzc5tDgVA&s=09> πΉYoutube<https://youtu.be/XDT5VFfK1bU?si=SsIa3wh7-FmBt-6h> ________________________________ From: PALS (SANDWELL AND WEST BIRMINGHAM HOSPITALS NHS TRUST) <swb-tr.pals@nhs.net> Sent: Tuesday, February 24, 2026 9:21:45 AM To: MarieMeronym@outlook.com <mariemeronym@outlook.com> Subject: Acknowledgement of Your Recent Concern E25/0661 Dear Ms Brown Thank you for reaching out to us and sharing your concerns. We apologise for the experience you have had, and we are sorry that it did not meet the high standards we aim to deliver. Your feedback is important to us, and we appreciate you taking the time to make us aware of the issue. We acknowledge that your concerns relate to the Ward A7 and we want to assure you that we are taking this matter seriously. As you are inpatient, we have forwarded your concerns and supporting documents to the management team within this department, who will be reviewing the details thoroughly and will speak to you directly to resolve your concerns locally. Should you wish to discuss your concerns further, please feel free to contact us directly at 0121 507 4080/5892 or via email at swbh.patient-experience@nhs.net<mailto:swbh.patient-experience@nhs.net> Thank you again for helping us address this concern, and we apologise for any inconvenience. We are here to assist you every step of the way toward a resolution. Kind regards Labli [hello-my-name-is-logo-web-small] Labli Assistant Patient Experience Officer Complaints department Mobile Phone: 07814770231 Office: 0121 507 4080/5892 Email: swbh.patient-experience@nhs.net<mailto:swbh.patient-experience@nhs.net> Address: Patient Experience Team | Sandwell Health Campus | Bryan Knight Suite B71 4HJ From: PATIENT-EXPERIENCE (SANDWELL AND WEST BIRMINGHAM HOSPITALS NHS TRUST) <swbh.patient-experience@nhs.net> Sent: 23 February 2026 14:28 To: PALS (SANDWELL AND WEST BIRMINGHAM HOSPITALS NHS TRUST) <swb-tr.pals@nhs.net> Subject: FW: Urgent: Request for Advocacy Support and Safe Discharge Planning (Current Inpatient) Importance: High ________________________________ From: Marie Meronym Sent: Monday, 23 February 2026 14:26:57 (UTC+00:00) Dublin, Edinburgh, Lisbon, London To: PATIENT-EXPERIENCE (SANDWELL AND WEST BIRMINGHAM HOSPITALS NHS TRUST) ; swbh.tr.patient-experience@nhs.net<mailto:swbh.tr.patient-experience@nhs.net> PALS Cc: Alex Garven Subject: Urgent: Request for Advocacy Support and Safe Discharge Planning (Current Inpatient) This message originated from outside of NHS.net Connect. Please do not click links or open attachments unless you recognise the sender and know the content is safe. Dear PALS Team, I am currently an inpatient at Midland Metropolitan Hospital and am seeking assistance regarding discharge planning and access to advocacy support. Ward staff have indicated that I do not qualify for an advocate because I can communicate verbally and do not yet have a formal autism/ADHD diagnosis recorded in my NHS notes. However, I experience significant difficulty managing complex information, paperwork, and coordination between services due to neurodevelopmental and physical conditions. These difficulties directly affect my ability to participate fully in discharge decisions. I am not refusing discharge. My concern is that my home environment currently presents significant accessibility barriers, including issues with safe toileting, kitchen use, and fall risk. These matters are known to external agencies and are being addressed with the support of an independent advocates whose contact details are below. I offered to supply documentation regarding my autism assessment and housing-related risks, but this was declined so I've attached it here with appropriate escalations to assistant CEO of SMBC whose promised response is outstanding - please note the date. I am requesting: * Clarification of my entitlement to advocacy support under the Care Act 2014 and hospital discharge guidance * Assistance to ensure I can participate effectively in discharge planning * Liaison with my external advocate, Elizabeth Deegan (Aspire) * Helen Charles (Sandwell Advocacy) 01215208070 * Jekaterina (West Midlands Fire Service) 07973810556 * Maria Wiseman (Community Offer) email attached with contact details * Assurance that discharge will be to a safe environment with appropriate support in place I am keen to work cooperatively with the team and achieve a safe, sustainable discharge plan. I would be grateful if this request could be recorded formally and reviewed as soon as possible. Thank you for your assistance. Yours sincerely, Marie Meronym<https://open.spotify.com/playlist/0oLRUjiLwgchTR6BwnAhoh?si=IUWluULTRSOaT8of-9RqLQ&pi=8XIApYQnSZGSv> Non-Chronological Records π§π½βπ«π DEI Concerns<https://www.facebook.com/share/18DxCqb8qf/> DEI Education<https://www.facebook.com/share/18BPKdLFH9/> Personal<https://www.facebook.com/share/1C3fQoYDhS/> πΈ Instagram<https://www.instagram.com/wobblywandereruk?igsh=MWk1Y2c2bW8zcDl3cg==> βοΈπ LinkedIn<https://www.linkedin.com/in/mariemeronymsmbctenant?utm_source=share&utm_campaign=share_via&utm_content=profile&utm_medium=android_app> π§π½ββοΈ X<https://x.com/SandwellWoman> πΉ YouTube<https://youtube.com/@sandwellmbctenant?si=I5JY4NQL6UDRxjq7> ************************************************************************************** ****************************** This message may contain confidential information. If you are not the intended recipient please: i) inform the sender that you have received the message in error before deleting it; and ii) do not disclose, copy or distribute information in this e-mail or take any action in relation to its content (to do so is strictly prohibited and may be unlawful). Thank you for your co-operation. NHS.net Connect is the secure email, collaboration and directory service available for all NHS staff in England. NHS.net Connect is approved for exchanging patient data and other sensitive information with NHS.net Connect and other accredited email services. For more information and to find out how you can switch visit Joining NHS.net Connect β NHS.net Connect Support<https://support.nhs.net/article-categories/joining-nhsmail/>
26 February 2026FORMAL COMPLAINT β Unsafe Discharge (24 Feb 2026), Lack of Advocacy, Exclusion from Care Planning, and Ongoing Risk (Re: Acknowledgement of Your Recent Concern E25/0661)"Marie Meronym"EMAIL
From
"Marie Meronym"
To
β
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β
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β
Subject
FORMAL COMPLAINT β Unsafe Discharge (24 Feb 2026), Lack of Advocacy, Exclusion from Care Planning, and Ongoing Risk (Re: Acknowledgement of Your Recent Concern E25/0661)
Message
Dear PALS Team, I am submitting a formal complaint regarding my cancelled discharge on Tuesday 24 February 2026, which I consider unsafe, poorly coordinated, and conducted without my meaningful involvement or access to advocacy. This was the third unsafe discharge within three months: 13 September 2025 β Unsafe discharge from Rowley Regis Hospital 22 January 2026 β Unsafe discharge from Midland Metropolitan Hospital 24 February 2026 β Current unsafe discharge Following the September discharge, the risk at my bungalow was so severe that I lived in my car/caravan for several weeks to avoid falls. After the January discharge, I was subjected to four daily care visits simply to use the toilet due to lack of essential adaptations, resulting in dehydration, loss of dignity, and deterioration in health. Despite this documented history, no effective measures were implemented to prevent recurrence. Lack of Safe Environment My home currently lacks essential accessibility features, including grab rails and a functioning kitchen sink/tap. As a result, I cannot safely: Toilet independently Prepare food Obtain water Move safely within the property Meet basic daily needs without risk of falls or injury Discharging me to such an environment places me at foreseeable risk of harm. π§π½βπ¦½I require a wheelchair-accessible environment. A care package cannot substitute for fundamental environmental safety. Lack of Advocacy I repeatedly requested an advocate prior to discharge due to autism and ADHD affecting my ability to process complex decisions under stress. These requests were refused. βοΈUnder the Care Act 2014, individuals who have substantial difficulty in participating in care planning are entitled to independent advocacy where no appropriate person is available to support them. No such advocacy was provided. Exclusion from Care Planning I was not meaningfully involved in discharge planning and was not provided with a clear, agreed plan that addressed my safety concerns. I also experienced significant difficulty obtaining copies of my discharge documentation. New Concerns Following Discharge Today, I received: Text messages regarding a repair appointment I was not informed about Contact from a care agency stating they had been commissioned to provide care at my home, again without my knowledge or agreement This indicates ongoing decision-making about my care and housing without consultation or consent. Unsuitable Care Model I do not require daily care visits and cannot tolerate them due to autism and ADHD. The only support I am requesting is: Two sessions per week β four hours per session For assistance with: Paperwork, budgeting, and phone calls Grocery shopping for heavy items Household tasks (bedding, sweeping, mopping) Access to community and health activities such as swimming and yoga Daily personal care is not appropriate and has previously caused harm. Legal and Professional Duties The discharge and subsequent arrangements appear inconsistent with: NHS duty of safe discharge βοΈCare Act 2014 duties to assess needs and provide appropriate support βοΈEquality Act 2010 obligations to make reasonable adjustments for disability Principles of person-centred care Trauma-informed practice, which I have requested in writing for over a year Discharging a patient to an environment where they cannot meet basic needs safely constitutes foreseeable risk and potential neglect of duty of care. Requested Actions I request: Immediate review of the discharge decision Written confirmation that my safety concerns are formally recorded Involvement of an independent advocate in all future planning A safe discharge plan based on environmental accessibility, not forced dependency Full involvement in decisions about my care and home A formal response to this complaint I am not refusing support. I am requesting safe, appropriate, and sustainable arrangements that enable independence rather than ongoing risk. Please treat this complaint as urgent. Kind regards, Marie Meronym (Brown) NHS number 608 276 5451 / DOB 18/09/1975 Ward A7 Side room 13 Marie Meronym π§π½βπ¦½π§ Euan's Guide ππ§π½βπ« Facebook π§π½βπ¦½π§ Google Maps πΈ Instagram π§π½βπ« LinkedIn βοΈ X πΉ Youtube From: PALS (SANDWELL AND WEST BIRMINGHAM HOSPITALS NHS TRUST) <swb-tr.pals@nhs.net> Sent: Tuesday, February 24, 2026 9:21:45 AM To: MarieMeronym@outlook.com <mariemeronym@outlook.com> Subject: Acknowledgement of Your Recent Concern E25/0661 Dear Ms Brown Thank you for reaching out to us and sharing your concerns. We apologise for the experience you have had, and we are sorry that it did not meet the high standards we aim to deliver. Your feedback is important to us, and we appreciate you taking the time to make us aware of the issue. We acknowledge that your concerns relate to the Ward A7 and we want to assure you that we are taking this matter seriously. As you are inpatient, we have forwarded your concerns and supporting documents to the management team within this department, who will be reviewing the details thoroughly and will speak to you directly to resolve your concerns locally. Should you wish to discuss your concerns further, please feel free to contact us directly at 0121 507 4080/5892 or via email at swbh.patient-experience@nhs.net Thank you again for helping us address this concern, and we apologise for any inconvenience. We are here to assist you every step of the way toward a resolution. Kind regards Labli Labli Assistant Patient Experience Officer Complaints department Mobile Phone: 07814770231 Office: 0121 507 4080/5892 Email: swbh.patient-experience@nhs.net Address: Patient Experience Team | Sandwell Health Campus | Bryan Knight Suite B71 4HJ From: PATIENT-EXPERIENCE (SANDWELL AND WEST BIRMINGHAM HOSPITALS NHS TRUST) <swbh.patient-experience@nhs.net> Sent: 23 February 2026 14:28 To: PALS (SANDWELL AND WEST BIRMINGHAM HOSPITALS NHS TRUST) <swb-tr.pals@nhs.net> Subject: FW: Urgent: Request for Advocacy Support and Safe Discharge Planning (Current Inpatient) Importance: High From: Marie Meronym Sent: Monday, 23 February 2026 14:26:57 (UTC+00:00) Dublin, Edinburgh, Lisbon, London To: PATIENT-EXPERIENCE (SANDWELL AND WEST BIRMINGHAM HOSPITALS NHS TRUST) ; swbh.tr.patient-experience@nhs.net PALS Cc: Alex Garven Subject: Urgent: Request for Advocacy Support and Safe Discharge Planning (Current Inpatient) This message originated from outside of NHS.net Connect. Please do not click links or open attachments unless you recognise the sender and know the content is safe. Dear PALS Team, I am currently an inpatient at Midland Metropolitan Hospital and am seeking assistance regarding discharge planning and access to advocacy support. Ward staff have indicated that I do not qualify for an advocate because I can communicate verbally and do not yet have a formal autism/ADHD diagnosis recorded in my NHS notes. However, I experience significant difficulty managing complex information, paperwork, and coordination between services due to neurodevelopmental and physical conditions. These difficulties directly affect my ability to participate fully in discharge decisions. I am not refusing discharge. My concern is that my home environment currently presents significant accessibility barriers, including issues with safe toileting, kitchen use, and fall risk. These matters are known to external agencies and are being addressed with the support of an independent advocates whose contact details are below. I offered to supply documentation regarding my autism assessment and housing-related risks, but this was declined so I've attached it here with appropriate escalations to assistant CEO of SMBC whose promised response is outstanding - please note the date. I am requesting: Clarification of my entitlement to advocacy support under the Care Act 2014 and hospital discharge guidance Assistance to ensure I can participate effectively in discharge planning Liaison with my external advocate, Elizabeth Deegan (Aspire) Helen Charles (Sandwell Advocacy) 01215208070 Jekaterina (West Midlands Fire Service) 07973810556 Maria Wiseman (Community Offer) email attached with contact details Assurance that discharge will be to a safe environment with appropriate support in place I am keen to work cooperatively with the team and achieve a safe, sustainable discharge plan. I would be grateful if this request could be recorded formally and reviewed as soon as possible. Thank you for your assistance. Yours sincerely, Marie Meronym Non-Chronological Records π§π½βπ«π DEI Concerns DEI Education Personal πΈ Instagram βοΈπ LinkedIn π§π½ββοΈ X πΉ YouTube ************************************************************************************** ****************************** This message may contain confidential information. If you are not the intended recipient please: i) inform the sender that you have received the message in error before deleting it; and ii) do not disclose, copy or distribute information in this e-mail or take any action in relation to its content (to do so is strictly prohibited and may be unlawful). Thank you for your co-operation. NHS.net Connect is the secure email, collaboration and directory service available for all NHS staff in England. NHS.net Connect is approved for exchanging patient data and other sensitive information with NHS.net Connect and other accredited email services. For more information and to find out how you can switch visit Joining NHS.net Connect β NHS.net Connect Support
27 February 2026Subject Access Request β Full Records Including PALS and Advocacy Communications"Marie Meronym"EMAIL
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Subject Access Request β Full Records Including PALS and Advocacy Communications
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Dear Information Governance Team, I am submitting a formal Subject Access Request under Article 15 UK GDPR and the Data Protection Act 2018. Please provide copies of all personal data held about me across all Trust systems, including but not limited to: Clinical records β All inpatient and outpatient notes β Nursing notes β OT, physio and discharge planning documentation β Safeguarding assessments β Risk assessments β Capacity assessments β Care plans (including drafts and amended versions) β Metadata showing creation and amendment timestamps Discharge-related records β All discharge planning discussions β Internal communications regarding discharge decisions β Records relating to refusal of advocacy β Documentation of any claimed or attempted contact with advocacy services β Documentation relating to commissioning of care agency support β Records of data shared with any external agency Advocacy communications β Any referral forms β Contact logs β Emails to or from advocacy providers β Internal discussions referencing advocacy PALS and complaints correspondence β All emails sent to or from PALS referencing me β Internal PALS communications regarding my complaints β Escalation emails β Any draft responses β Communications between PALS and clinical teams β Notes made following my in-person or written complaints Emails and internal communications β All emails mentioning my name, NHS number or hospital number β Internal messaging system records β Teams/secure messaging logs β Any communication between staff discussing my case Audit logs β Full access logs showing which staff accessed my record and when β Records of amendments made after discharge External data sharing β Details of any information shared with commissioned care agencies β Data sharing agreements or referral documentation β Lawful basis relied upon for sharing Please also provide copies of all available CCTV, security footage, and body-worn camera recordings in which I appear during my admission and discharge, including footage from wards, corridors, entrances/exits, external areas, and any interactions with security, or staff. This request specifically includes footage showing my movement, self-regulation behaviours (including stimming), time spent outside the ward, and the circumstances of my discharge. Where footage cannot be released directly due to third-party privacy, please provide appropriate redacted copies or written confirmation of the footageβs existence, retention period, and any reasons for non-disclosure. Please provide records in electronic format. If any data is withheld, please clearly identify the legal basis for exemption. Given the live safeguarding and discharge concerns involved, I request confirmation of receipt and the statutory response deadline. Kind regards, Marie Brown NHS number: 6082765451 DOB: 18/09/1975 Marie Meronym Non-Chronological Records π§π½βπ«π DEI Concerns DEI Education Personal πΈ Instagram βοΈπ LinkedIn π§π½ββοΈ X πΉ YouTube
28 February 2026 Fw: Subject Access Request β Full Records Including PALS and Advocacy CommunicationsMarie Meronym <MarieMeronym@outlook.com>EMAIL
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Marie Meronym <MarieMeronym@outlook.com>
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"mariemeronym@gmail.com" <mariemeronym@gmail.com>
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Fw: Subject Access Request β Full Records Including PALS and Advocacy Communications
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Marie Meronym<https://open.spotify.com/playlist/0oLRUjiLwgchTR6BwnAhoh?si=IUWluULTRSOaT8of-9RqLQ&pi=8XIApYQnSZGSv> Non-Chronological Records π§π½βπ«π DEI Concerns<https://www.facebook.com/share/18DxCqb8qf/> DEI Education<https://www.facebook.com/share/18BPKdLFH9/> Personal<https://www.facebook.com/share/1C3fQoYDhS/> πΈ Instagram<https://www.instagram.com/wobblywandereruk?igsh=MWk1Y2c2bW8zcDl3cg==> βοΈπ LinkedIn<https://www.linkedin.com/in/mariemeronymsmbctenant?utm_source=share&utm_campaign=share_via&utm_content=profile&utm_medium=android_app> π§π½ββοΈ X<https://x.com/SandwellWoman> πΉ YouTube<https://youtube.com/@sandwellmbctenant?si=I5JY4NQL6UDRxjq7> ________________________________ From: Marie Meronym <MarieMeronym@outlook.com> Sent: Friday, February 27, 2026 6:32:13 PM To: swb-tr.ig@nhs.net <swb-tr.ig@nhs.net> Cc: swbh.pals@nhs.net <swbh.pals@nhs.net>; Alex Garven <alex.garven@expresssolicitors.co.uk> Subject: Subject Access Request β Full Records Including PALS and Advocacy Communications Dear Information Governance Team, I am submitting a formal Subject Access Request under Article 15 UK GDPR and the Data Protection Act 2018. Please provide copies of all personal data held about me across all Trust systems, including but not limited to: Clinical records β All inpatient and outpatient notes β Nursing notes β OT, physio and discharge planning documentation β Safeguarding assessments β Risk assessments β Capacity assessments β Care plans (including drafts and amended versions) β Metadata showing creation and amendment timestamps Discharge-related records β All discharge planning discussions β Internal communications regarding discharge decisions β Records relating to refusal of advocacy β Documentation of any claimed or attempted contact with advocacy services β Documentation relating to commissioning of care agency support β Records of data shared with any external agency Advocacy communications β Any referral forms β Contact logs β Emails to or from advocacy providers β Internal discussions referencing advocacy PALS and complaints correspondence β All emails sent to or from PALS referencing me β Internal PALS communications regarding my complaints β Escalation emails β Any draft responses β Communications between PALS and clinical teams β Notes made following my in-person or written complaints Emails and internal communications β All emails mentioning my name, NHS number or hospital number β Internal messaging system records β Teams/secure messaging logs β Any communication between staff discussing my case Audit logs β Full access logs showing which staff accessed my record and when β Records of amendments made after discharge External data sharing β Details of any information shared with commissioned care agencies β Data sharing agreements or referral documentation β Lawful basis relied upon for sharing Please also provide copies of all available CCTV, security footage, and body-worn camera recordings in which I appear during my admission and discharge, including footage from wards, corridors, entrances/exits, external areas, and any interactions with security, or staff. This request specifically includes footage showing my movement, self-regulation behaviours (including stimming), time spent outside the ward, and the circumstances of my discharge. Where footage cannot be released directly due to third-party privacy, please provide appropriate redacted copies or written confirmation of the footageβs existence, retention period, and any reasons for non-disclosure. Please provide records in electronic format. If any data is withheld, please clearly identify the legal basis for exemption. Given the live safeguarding and discharge concerns involved, I request confirmation of receipt and the statutory response deadline. Kind regards, Marie Brown NHS number: 6082765451 DOB: 18/09/1975 Marie Meronym<https://open.spotify.com/playlist/0oLRUjiLwgchTR6BwnAhoh?si=IUWluULTRSOaT8of-9RqLQ&pi=8XIApYQnSZGSv> Non-Chronological Records π§π½βπ«π DEI Concerns<https://www.facebook.com/share/18DxCqb8qf/> DEI Education<https://www.facebook.com/share/18BPKdLFH9/> Personal<https://www.facebook.com/share/1C3fQoYDhS/> πΈ Instagram<https://www.instagram.com/wobblywandereruk?igsh=MWk1Y2c2bW8zcDl3cg==> βοΈπ LinkedIn<https://www.linkedin.com/in/mariemeronymsmbctenant?utm_source=share&utm_campaign=share_via&utm_content=profile&utm_medium=android_app> π§π½ββοΈ X<https://x.com/SandwellWoman> πΉ YouTube<https://youtube.com/@sandwellmbctenant?si=I5JY4NQL6UDRxjq7>
04 March 2026 Re: Support Request β Advocacy and Strategic Guidance"neal@theneuroinclusionproject.co.uk" <neal@theneuroinclusionproject.co.uk>EMAIL
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Re: Support Request β Advocacy and Strategic Guidance
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Dear Marie, Thank you for reaching out and for taking the time to explain your situation so clearly. What you describe is unfortunately a pattern many neurodivergent adults encounter within complex healthcare systems: the difficulty is often not a lack of insight or engagement, but the challenge of being heard within communication structures that are not designed with neurodivergent communication styles in mind. I want to acknowledge the seriousness of what youβve described, particularly the experience of repeated unsafe discharges and disagreement around diagnosis. Situations where clinical interpretation, safeguarding concerns, and system processes intersect can be extremely difficult to navigate without structured support. While my work is primarily focused on systems design, neurodivergent-informed service development, and strategic advocacy rather than individual case advocacy, I can often provide guidance on how to approach communication with healthcare organisations in ways that are more likely to be received constructively within NHS structures. In practical terms, support I may be able to offer includes: β’ Guidance on structuring written communication to NHS services so that concerns are framed in a way that aligns with clinical governance and safeguarding language. β’ Advice on navigating escalation routes within NHS organisations (for example PALS, clinical governance teams, and safeguarding channels). β’ Strategic framing of neurodivergent needs in a way that helps decision-makers understand the issue as a systems matter rather than a personal disagreement. β’ Signposting to organisations that specialise in formal healthcare advocacy where appropriate. Regarding the DBT-informed longitudinal diagnostic pathway you mentioned, that sounds like a thoughtful and potentially valuable concept. Redesigning diagnostic pathways to reduce waiting times and clinician burden while improving patient experience is an area of active interest across many NHS systems. I would be open to hearing a little more about your thinking and, if appropriate, advising on possible routes for sharing it constructively. If it would be helpful, we could arrange a short conversation to better understand your situation and determine what guidance might be most useful. If you are comfortable, you may also wish to share any written correspondence you have already sent to SWBH so I can understand the context of the communication challenges youβve encountered. Please note that I cannot provide legal representation or formal advocacy in clinical disputes, but I am happy to offer strategic guidance and point you toward appropriate support where possible. Thank you again for reaching out, and I appreciate the clarity and thoughtfulness with which youβve described both your needs and your ideas. Kind regards, Neal Neal Glendenning Founder The Neuro Inclusion Project / NdCare Group
04 March 2026 Fw: Subject Access Request β Full Records Including PALS and Advocacy CommunicationsMarie Meronym <MarieMeronym@outlook.com>EMAIL
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Fw: Subject Access Request β Full Records Including PALS and Advocacy Communications
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________________________________ From: Marie Meronym <MarieMeronym@outlook.com> Sent: Friday, February 27, 2026 6:32:15 pm To: swb-tr.ig@nhs.net <swb-tr.ig@nhs.net> Cc: swbh.pals@nhs.net <swbh.pals@nhs.net>; Alex Garven <alex.garven@expresssolicitors.co.uk> Subject: Subject Access Request β Full Records Including PALS and Advocacy Communications Dear Information Governance Team, I am submitting a formal Subject Access Request under Article 15 UK GDPR and the Data Protection Act 2018. Please provide copies of all personal data held about me across all Trust systems, including but not limited to: Clinical records β All inpatient and outpatient notes β Nursing notes β OT, physio and discharge planning documentation β Safeguarding assessments β Risk assessments β Capacity assessments β Care plans (including drafts and amended versions) β Metadata showing creation and amendment timestamps Discharge-related records β All discharge planning discussions β Internal communications regarding discharge decisions β Records relating to refusal of advocacy β Documentation of any claimed or attempted contact with advocacy services β Documentation relating to commissioning of care agency support β Records of data shared with any external agency Advocacy communications β Any referral forms β Contact logs β Emails to or from advocacy providers β Internal discussions referencing advocacy PALS and complaints correspondence β All emails sent to or from PALS referencing me β Internal PALS communications regarding my complaints β Escalation emails β Any draft responses β Communications between PALS and clinical teams β Notes made following my in-person or written complaints Emails and internal communications β All emails mentioning my name, NHS number or hospital number β Internal messaging system records β Teams/secure messaging logs β Any communication between staff discussing my case Audit logs β Full access logs showing which staff accessed my record and when β Records of amendments made after discharge External data sharing β Details of any information shared with commissioned care agencies β Data sharing agreements or referral documentation β Lawful basis relied upon for sharing Please also provide copies of all available CCTV, security footage, and body-worn camera recordings in which I appear during my admission and discharge, including footage from wards, corridors, entrances/exits, external areas, and any interactions with security, or staff. This request specifically includes footage showing my movement, self-regulation behaviours (including stimming), time spent outside the ward, and the circumstances of my discharge. Where footage cannot be released directly due to third-party privacy, please provide appropriate redacted copies or written confirmation of the footageβs existence, retention period, and any reasons for non-disclosure. Please provide records in electronic format. If any data is withheld, please clearly identify the legal basis for exemption. Given the live safeguarding and discharge concerns involved, I request confirmation of receipt and the statutory response deadline. Kind regards, Marie Brown NHS number: 6082765451 DOB: 18/09/1975 Marie Meronym<https://open.spotify.com/playlist/0oLRUjiLwgchTR6BwnAhoh?si=IUWluULTRSOaT8of-9RqLQ&pi=8XIApYQnSZGSv> Non-Chronological Records π§π½βπ«π DEI Concerns<https://www.facebook.com/share/18DxCqb8qf/> DEI Education<https://www.facebook.com/share/18BPKdLFH9/> Personal<https://www.facebook.com/share/1C3fQoYDhS/> πΈ Instagram<https://www.instagram.com/wobblywandereruk?igsh=MWk1Y2c2bW8zcDl3cg==> βοΈπ LinkedIn<https://www.linkedin.com/in/mariemeronymsmbctenant?utm_source=share&utm_campaign=share_via&utm_content=profile&utm_medium=android_app> π§π½ββοΈ X<https://x.com/SandwellWoman> πΉ YouTube<https://youtube.com/@sandwellmbctenant?si=I5JY4NQL6UDRxjq7>
05 March 2026Re: Support Request β Advocacy and Strategic GuidanceMarie Meronym <mariemeronym@gmail.com>EMAIL
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Dear Neal, Thank you for your thoughtful response. I appreciate the time you took to read and reflect on what I shared. Your description of the communication challenges neurodivergent adults face within complex healthcare systems resonates strongly with my experience. The central difficulty has not been lack of insight or engagement, but the absence of communication structures that allow information to be processed and coordinated effectively. At present the immediate concern is safety. I have experienced repeated unsafe discharges from SWBH while living in a wheelchair-inaccessible council property that lacks basic adaptations such as grab rails. These conditions have already resulted in multiple falls and injuries, including a recent admission following a fall on 17 February. I have been requesting advocacy support during hospital admissions because I cannot reliably process complex verbal information in unscheduled meetings, particularly when multiple teams (housing, OT, physiotherapy, discharge planning, and medical staff) are involved. Despite having capacity, I struggle to coordinate these systems without written information and a named liaison. Your offer of strategic guidance on communicating within NHS structures would be extremely helpful. I would welcome a short conversation if you are available. To provide context, I can share a small selection of correspondence and documentation relating to: β’ repeated unsafe discharge concerns β’ requests for reasonable adjustments related to autism and ADHD β’ safeguarding concerns linked to the accessibility of my home environment I would also be glad to briefly explain the DBT-informed longitudinal diagnostic pathway concept I mentioned, though I agree the immediate priority is navigating the current system safely. Thank you again for your willingness to offer guidance. Please let me know if a short call would be possible and what times might work for you. Kind regards, Marie https://open.spotify.com/playlist/0oLRUjiLwgchTR6BwnAhoh?si=IUWluULTRSOaT8of-9RqLQ&pi=8XIApYQnSZGSv On Wed, 4 Mar 2026, 3:54β―pm neal@theneuroinclusionproject.co.uk, < neal@theneuroinclusionproject.co.uk> wrote: > Dear Marie, > Thank you for reaching out and for taking the time to explain your > situation so clearly. What you describe is unfortunately a pattern many > neurodivergent adults encounter within complex healthcare systems: the > difficulty is often not a lack of insight or engagement, but the challenge > of being heard within communication structures that are not designed with > neurodivergent communication styles in mind. > I want to acknowledge the seriousness of what youβve described, > particularly the experience of repeated unsafe discharges and disagreement > around diagnosis. Situations where clinical interpretation, safeguarding > concerns, and system processes intersect can be extremely difficult to > navigate without structured support. > While my work is primarily focused on systems design, > neurodivergent-informed service development, and strategic advocacy rather > than individual case advocacy, I can often provide guidance on how to > approach communication with healthcare organisations in ways that are more > likely to be received constructively within NHS structures. > In practical terms, support I may be able to offer includes: > β’ Guidance on structuring written communication to NHS services so that > concerns are framed in a way that aligns with clinical governance and > safeguarding language. > β’ Advice on navigating escalation routes within NHS organisations (for > example PALS, clinical governance teams, and safeguarding channels). > β’ Strategic framing of neurodivergent needs in a way that helps > decision-makers understand the issue as a systems matter rather than a > personal disagreement. > β’ Signposting to organisations that specialise in formal healthcare > advocacy where appropriate. > Regarding the DBT-informed longitudinal diagnostic pathway you mentioned, > that sounds like a thoughtful and potentially valuable concept. Redesigning > diagnostic pathways to reduce waiting times and clinician burden while > improving patient experience is an area of active interest across many NHS > systems. I would be open to hearing a little more about your thinking and, > if appropriate, advising on possible routes for sharing it constructively. > If it would be helpful, we could arrange a short conversation to better > understand your situation and determine what guidance might be most useful. > If you are comfortable, you may also wish to share any written > correspondence you have already sent to SWBH so I can understand the > context of the communication challenges youβve encountered. > Please note that I cannot provide legal representation or formal advocacy > in clinical disputes, but I am happy to offer strategic guidance and point > you toward appropriate support where possible. > Thank you again for reaching out, and I appreciate the clarity and > thoughtfulness with which youβve described both your needs and your ideas. > > Kind regards, > > Neal > > Neal Glendenning > Founder > > The Neuro Inclusion Project / NdCare Group > >
06 March 2026Request for advocacy support and safe discharge planning β referral from STAR Team"Marie Meronym"EMAIL
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Request for advocacy support and safe discharge planning β referral from STAR Team
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Hi Sarah, I was referred to you today by the STAR Team following concerns about my current discharge situation and the lack of coordinated support. Briefly, the core issues are: β’ No advocate despite confirmed Autism and ADHD diagnosis β’ Unsafe discharge planning linked to an inaccessible property β’ Lack of coordination between hospital teams, housing, and social care β’ Confusion around basic care arrangements (for example my shower chair being expected to function as both a commode and shower equipment) Because the situation has developed over several admissions and safeguarding concerns, I have been documenting events carefully to maintain an accurate timeline. Rather than sending a large number of attachments, it may be easier if you review this summary and the linked posts which outline the situation and todayβs update: https://www.linkedin.com/posts/mariemeronymsmbctenant_the-oliver-mcgowan-mandatory-training-on-activity-7433180702914879488-s1ge?utm_source=share&utm_medium=member_android&rcm=ACoAAD8bjKABr6-byMDXn4kC7AnHQIF6n2aycwA The posts include dates, updates from hospital staff, and the current issues being raised with PALS and discharge teams. If possible, could you review and then arrange a call with me so we can discuss: β’ Advocacy support β’ Safe discharge planning β’ How social care intends to assess the property and care needs in practice Written communication works best for me due to my autism, so if a call is planned it really helps if I know the purpose and key points in advance. Thank you for taking the time to review. I am keen to resolve this constructively and prevent further unsafe discharges, and I am aware there are inaccurate records within SMBC, request you talk to any of the six advocates repeatedly referred to for balanced perspective please? Marie Meronym Non-Chronological Records π§π½βπ«π DEI Concerns DEI Education Personal πΈ Instagram βοΈπ LinkedIn π§π½ββοΈ X πΉ YouTube ππ½ Doctors chats uploaded todayπ«
06 March 2026RE: Request for advocacy support and safe discharge planning β referral from STAR TeamSarah Bradley <Sarah_bradley@sandwell.gov.uk>EMAIL
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RE: Request for advocacy support and safe discharge planning β referral from STAR Team
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Good Afternoon, Thank you for your email and the points raised. This will be reviewed and you will be contacted in due course. Should you wish to raise a formal complaint please contact β customer_services@sandwell.gov.uk I have attached the Guide for further advice and guidance. Kind Regards Sarah Bradley Team Manager Sarah_bradley@sandwell.gov.uk www.sandwell.gov.uk Sandwell Council House, Freeth Street, Oldbury, B69 3DE From: Marie Meronym <MarieMeronym@outlook.com> Sent: 06 March 2026 16:40 To: Sarah Bradley <Sarah_bradley@sandwell.gov.uk> Subject: Request for advocacy support and safe discharge planning β referral from STAR Team You don't often get email from mariemeronym@outlook.com . Learn why this is important CAUTION: This email originated from outside of the Council / Children's Trust. Do not click links or open attachments unless you recognise the sender and know the content is safe. Hi Sarah, I was referred to you today by the STAR Team following concerns about my current discharge situation and the lack of coordinated support. Briefly, the core issues are: β’ No advocate despite confirmed Autism and ADHD diagnosis β’ Unsafe discharge planning linked to an inaccessible property β’ Lack of coordination between hospital teams, housing, and social care β’ Confusion around basic care arrangements (for example my shower chair being expected to function as both a commode and shower equipment) Because the situation has developed over several admissions and safeguarding concerns, I have been documenting events carefully to maintain an accurate timeline. Rather than sending a large number of attachments, it may be easier if you review this summary and the linked posts which outline the situation and todayβs update: https://www.linkedin.com/posts/mariemeronymsmbctenant_the-oliver-mcgowan-mandatory-training-on-activity-7433180702914879488-s1ge?utm_source=share&utm_medium=member_android&rcm=ACoAAD8bjKABr6-byMDXn4kC7AnHQIF6n2aycwA The posts include dates, updates from hospital staff, and the current issues being raised with PALS and discharge teams. If possible, could you review and then arrange a call with me so we can discuss: β’ Advocacy support β’ Safe discharge planning β’ How social care intends to assess the property and care needs in practice Written communication works best for me due to my autism, so if a call is planned it really helps if I know the purpose and key points in advance. Thank you for taking the time to review. I am keen to resolve this constructively and prevent further unsafe discharges, and I am aware there are inaccurate records within SMBC, request you talk to any of the six advocates repeatedly referred to for balanced perspective please? Marie Meronym Non-Chronological Records π§π½βπ«π DEI Concerns DEI Education Personal πΈ Instagram βοΈπ LinkedIn π§π½ββοΈ X πΉ YouTube ππ½ Doctors chats uploaded today π«
06 March 2026 Re: Support Request β Advocacy and Strategic Guidance"neal@theneuroinclusionproject.co.uk" <neal@theneuroinclusionproject.co.uk>EMAIL
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Re: Support Request β Advocacy and Strategic Guidance
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Dear Marie, Thank you for your email, and for setting this out so clearly. I am very sorry to hear about what you have been experiencing. What you describe raises serious concerns, particularly given the repeated unsafe discharges, the inaccessibility of your home environment, and the resulting falls and injuries. It makes complete sense that navigating multiple teams and unscheduled verbal discussions would become overwhelming, especially without written communication, clear coordination, or a named point of contact. I would be very willing to offer some informal strategic guidance on how you might communicate this more effectively within NHS structures and related systems. I should say, just so expectations are clear, that I would be offering this as guidance and perspective rather than acting in any formal advocacy, legal, or clinical capacity. A short call would be possible. It would probably be most useful if we keep the immediate focus on safety, discharge risk, reasonable adjustments, and how to communicate your needs in a way that is harder for services to overlook or fragment. It also seems important to look directly at the councilβs role here. If you are living in a wheelchair-inaccessible property without basic adaptations such as grab rails, and this has already contributed to falls and injury, then there may be a housing responsibility to facilitate assessment and appropriate adaptations. Have you spoken directly with your housing officer about this, and if so, have they provided anything in writing about what action will or will not be taken? That part of the picture may be very important, particularly where safeguarding and discharge safety overlap. Ahead of that, please feel free to send a small selection of the most relevant documents or correspondence, particularly anything relating to: * unsafe discharge decisions * requests for autism/ADHD reasonable adjustments * safeguarding or housing/accessibility concerns * any contact with the council or housing officer regarding adaptations A concise sample will be enough to begin with, as I think it will help me get a clearer sense of the communication pattern and where the system is breaking down. If helpful, you can also include a short summary of the key outcomes you need most urgently, for example immediate discharge safeguards, written communication adjustments, named coordination, housing adaptations, or escalation within the council. That will help keep the conversation focused on the most pressing priorities. I agree that the DBT-informed longitudinal diagnostic pathway sounds interesting, but for now the priority should absolutely be your immediate safety and stabilising the communication around your care. Please send over the documents when ready, and we can then arrange a short call from there. With best wishes, Neal Neal Glendenning Founder The Neuro Inclusion Project / NdCare Group www.theneuroinclusionproject.co.uk<http://www.theneuroinclusionproject.co.uk/> ________________________________ From: Marie Meronym <mariemeronym@gmail.com> Sent: Thursday, March 5, 2026 4:41 PM To: neal@theneuroinclusionproject.co.uk <neal@theneuroinclusionproject.co.uk> Subject: Re: Support Request β Advocacy and Strategic Guidance Dear Neal, Thank you for your thoughtful response. I appreciate the time you took to read and reflect on what I shared. Your description of the communication challenges neurodivergent adults face within complex healthcare systems resonates strongly with my experience. The central difficulty has not been lack of insight or engagement, but the absence of communication structures that allow information to be processed and coordinated effectively. At present the immediate concern is safety. I have experienced repeated unsafe discharges from SWBH while living in a wheelchair-inaccessible council property that lacks basic adaptations such as grab rails. These conditions have already resulted in multiple falls and injuries, including a recent admission following a fall on 17 February. I have been requesting advocacy support during hospital admissions because I cannot reliably process complex verbal information in unscheduled meetings, particularly when multiple teams (housing, OT, physiotherapy, discharge planning, and medical staff) are involved. Despite having capacity, I struggle to coordinate these systems without written information and a named liaison. Your offer of strategic guidance on communicating within NHS structures would be extremely helpful. I would welcome a short conversation if you are available. To provide context, I can share a small selection of correspondence and documentation relating to: β’ repeated unsafe discharge concerns β’ requests for reasonable adjustments related to autism and ADHD β’ safeguarding concerns linked to the accessibility of my home environment I would also be glad to briefly explain the DBT-informed longitudinal diagnostic pathway concept I mentioned, though I agree the immediate priority is navigating the current system safely. Thank you again for your willingness to offer guidance. Please let me know if a short call would be possible and what times might work for you. Kind regards, Marie https://open.spotify.com/playlist/0oLRUjiLwgchTR6BwnAhoh?si=IUWluULTRSOaT8of-9RqLQ&pi=8XIApYQnSZGSv On Wed, 4 Mar 2026, 3:54β―pm neal@theneuroinclusionproject.co.uk<mailto:neal@theneuroinclusionproject.co.uk>, <neal@theneuroinclusionproject.co.uk<mailto:neal@theneuroinclusionproject.co.uk>> wrote: Dear Marie, Thank you for reaching out and for taking the time to explain your situation so clearly. What you describe is unfortunately a pattern many neurodivergent adults encounter within complex healthcare systems: the difficulty is often not a lack of insight or engagement, but the challenge of being heard within communication structures that are not designed with neurodivergent communication styles in mind. I want to acknowledge the seriousness of what youβve described, particularly the experience of repeated unsafe discharges and disagreement around diagnosis. Situations where clinical interpretation, safeguarding concerns, and system processes intersect can be extremely difficult to navigate without structured support. While my work is primarily focused on systems design, neurodivergent-informed service development, and strategic advocacy rather than individual case advocacy, I can often provide guidance on how to approach communication with healthcare organisations in ways that are more likely to be received constructively within NHS structures. In practical terms, support I may be able to offer includes: β’ Guidance on structuring written communication to NHS services so that concerns are framed in a way that aligns with clinical governance and safeguarding language. β’ Advice on navigating escalation routes within NHS organisations (for example PALS, clinical governance teams, and safeguarding channels). β’ Strategic framing of neurodivergent needs in a way that helps decision-makers understand the issue as a systems matter rather than a personal disagreement. β’ Signposting to organisations that specialise in formal healthcare advocacy where appropriate. Regarding the DBT-informed longitudinal diagnostic pathway you mentioned, that sounds like a thoughtful and potentially valuable concept. Redesigning diagnostic pathways to reduce waiting times and clinician burden while improving patient experience is an area of active interest across many NHS systems. I would be open to hearing a little more about your thinking and, if appropriate, advising on possible routes for sharing it constructively. If it would be helpful, we could arrange a short conversation to better understand your situation and determine what guidance might be most useful. If you are comfortable, you may also wish to share any written correspondence you have already sent to SWBH so I can understand the context of the communication challenges youβve encountered. Please note that I cannot provide legal representation or formal advocacy in clinical disputes, but I am happy to offer strategic guidance and point you toward appropriate support where possible. Thank you again for reaching out, and I appreciate the clarity and thoughtfulness with which youβve described both your needs and your ideas. Kind regards, Neal Neal Glendenning Founder The Neuro Inclusion Project / NdCare Group
02 June 2026Invitation: π‘π£οΈHelen Charles from Sandwell Advocacy @ Wed 3 Jun 2026 10:30am - 11:30am (BST) (mariemeronym@outlook.com)Marie Meronym <mariemeronym@gmail.com>EMAIL
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Invitation: π‘π£οΈHelen Charles from Sandwell Advocacy @ Wed 3 Jun 2026 10:30am - 11:30am (BST) (mariemeronym@outlook.com)
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96 π‘π£οΈHelen Charles from Sandwell Advocacy You have been invited by Marie Meronym to attend an event named π‘π£οΈHelen Charles from Sandwell Advocacy on Wednesday 3 Jun 2026 β 10:30am β 11:30am (United Kingdom Time). When Wednesday 3 Jun 2026 β 10:30am β 11:30am (United Kingdom Time) Location B43 5PH, Birmingham B43 5PH, UK View map Guests Marie Meronym - organiser mariemeronym@outlook.com View all guest info Reply for mariemeronym@outlook.com Yes No Maybe More options Invitation from Google Calendar You are receiving this email because you are an attendee of the event. Forwarding this invitation could allow any recipient to send a response to the organiser, be added to the guest list, invite others regardless of their own invitation status or modify your RSVP. Learn more
02 June 2026π‘π£οΈHelen Charles from Sandwell Advocacy"Marie Meronym"EMAIL
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96 π‘π£οΈHelen Charles from Sandwell Advocacy You have been invited by Marie Meronym to attend an event named π‘π£οΈHelen Charles from Sandwell Advocacy on Wednesday 3 Jun 2026 β 10:30am β 11:30am (United Kingdom Time). When Wednesday 3 Jun 2026 β 10:30am β 11:30am (United Kingdom Time) Location B43 5PH, Birmingham B43 5PH, UK View map Guests Marie Meronym - organiser mariemeronym@outlook.com View all guest info Reply for mariemeronym@outlook.com Yes No Maybe More options Invitation from Google Calendar You are receiving this email because you are an attendee of the event. Forwarding this invitation could allow any recipient to send a response to the organiser, be added to the guest list, invite others regardless of their own invitation status or modify your RSVP. Learn more
01 August 2026info at The Advocacy PeopleAdvocates & NFPsEMAIL
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01 August 2026The Advocacy PeopleAdvocates & NFPsEMAIL
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01 August 2026Louise Sandwell Advocacy Waiting To See What Helen Says Re My AgeAdvocates & NFPsEMAIL
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